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A CHS ally now president of SOGC
In this regard, she was significantly involved in the publication of The Management of Women with Bleeding Disorders prepared, in 2003, by the Subcommittee on Women with Bleeding Disorders for the Association of Hemophilia Clinic Directors of Canada (AHCDC of which she was affiliated. She also played an active role in the creation of the CHS coderouge program as a member of its Advisory Committee.
We are happy to share with you excerpts from her acceptance speech in which she affirms her dedication for bleeding disorders in women. Click here.
NEW CHS resources about HCV treatment support for 1986-1990 claimants
If you are a patient who received tainted blood or blood products and a registered claimant of the Hepatitis C (HCV) 1986-1990 Class Actions Settlement, now is a good time to speak to your doctor about new treatments for HCV. Treatment has progressed significantly, and it may be the right time for you to seek a cure.
People who are approved claimants under the Hepatitis C January 1, 1986 — July 1, 1990 Class Actions Settlement may be reimbursed for their costs for treatments and generally accepted hepatitis C medications that are not recoverable under any public or private health care plan. Moreover, thanks to a collaborative effort between the CHS and Gilead Health Sciences Canada, The Momentum Support Program can now provide upfront payments to those eligible for the high-cost treatment Sovaldi (sofosbuvir) while the claimants wait for a reimbursement from the 1986-1990 plan.
Because this is not well known by the claimants themselves nor their health care providers, the CHS has developed a new resource to provide more information.
Please click here for more information and access to the new brochure.
Products in the pipeline - NEW UPDATE (September 12, 2014)
Click here for more details.
NEW - Identifying common joint & muscle bleeds
The Canadian Physiotherapists in Hemophilia Care (CPHC) have developed an information booklet designed to help people living with bleeding disorders identify common joint and muscle bleeds in their earliest stages, so that proper treatment can begin as soon as possible. It is written to help people of all ages perform a self-assessment and to help parents assess their children.
Click here to download the booklet.
If you want copies of the booklet, please contact the CHS national office.
Hemophilia Today - August 2014
Submission on the funding of extended half‐life factor IX concentrates
Click here to read the CHS recommendations.
E-novella spreading the word on bleeding disorders launched on Wattpad
Playing off the popular Harlequin romance genre, ‘A Negative’ tells the story of a young woman unknowingly living with von Willebrand disease. We’ve published the e-novella on Wattpad – the world’s largest online community of writers and readers – in order to connect with young women across Canada. This unique approach introduces the issue into a different medium, enabling us to speak to and educate an engaged but unsuspecting audience.
CLICK HERE for the press release.
2014 CHS research grants awarded
CHS Dream of a Cure Research Program
The CHS / Pfizer Care Until Cure Research Program
The Canadian Hemophilia Society – Novo Nordisk Canada Psychosocial Research Program
The CHS/AHCDC/CSL Behring Hemostasis Fellowship Program
The Canadian Hemophilia Society - Baxter Canada Inherited Bleeding Disorders Fellowship Program for Nurses and Allied Health Care Professionals
Invitation to families of children with bleeding disorders to participate in an interview-based research study
Participation is open to children and youth ages 5-25 years old living with a bleeding disorder (including: hemophilia, von Willebrand disease, and other rare bleeding disorders), and their families (parents and siblings).
Click here for more details.
Invitation to patients with an inhibitor to participate in market research study
Your privacy is paramount to us and as such they are committed to the strictest confidentiality of your identities and responses. The results of their surveys are analyzed and reported in aggregate. Your identity is never revealed to anyone including the study sponsors.
At this time, the survey is only available in English.
If you are interested in the study, please contact email@example.com.
You and your family depend on research...
A bandage is not enough.
HELP SPREAD THE WORD ABOUT INHERITED BLEEDING DISORDERS.
Click here for more information about this important public awareness and outreach campaign or to download promotional material.
Make a difference - Help save lives
We can stop the suffering of those living with hemophilia and other bleeding disorders. But we can't do it alone. Only with the generous financial support of caring Canadians can we make our dream come true.
To support us