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Hemophilia Today - November 2016
MyCBDR: the promotional video now on YouTube!
The CHS just launched a promotional video showing how easy and fast it is to report bleeds and treatments to your treatment centre via MyCBDR.
The MyCBDR app now available in French
- Ensure all data recorded in the MyCBDR mobile app has been synchronised to the CBDR database, ie. the user must log on to the MyCBDR mobile app in Online mode and wait for all data to be synchronised. (If desired and to be certain that all data has been synchronised, users can log on to the MyCBDR web application and confirm their data is correct and up to date.)
- Log out of the MyCBDR mobile app.
- Uninstall the MyCBDR mobile app.
- Install the MonRCTC mobile app from the relevant app store (depending on the user’s device).
- Log on to the MonRCTC mobile app and wait for all data to be synchronised.
Good news about the 86-90 surplus in the Trust Fund for the 1986-1990 Hepatitis C Settlement Agreement
For more information, please click HERE.
CHS support to research and market studies
These studies, however, need our community to gather sufficient data to be relevant.
Please take the time to see what is presently happening with regards to research and market studies and to see if you could take an active part in them.
Click here for more details on the RESEARCH studies currently recruiting participants.
Click here for more details on the MARKET studies currently recruiting participants.
CHS Statement on the SIPPET study
Some studies showed a lower rate of inhibitor development with plasma-derived FVIII; other studies did not. The studies, however, were quite small and retrospective or observational in nature, and so they didn’t provide conclusive results.
The SIPPET study is the first prospective, randomized trial to attempt to answer the question.
CLICK HERE to read more about this important topic.
MyCBDR app now available!
If you have not registered for MyCBDR yet, you can submit your request at www.mycbdr.ca/MyCBDR/Account/Register. Remember to select your HTC from the drop-down menu available at registration. The AHCDC and McMaster University are working continually to enrol more HTCs into the CBDR network. In case you belong to an HTC that is not yet using CBDR, you can still request a MyCBDR account by selecting “Holding Center for MyCBDR” as your HTC.
Please feel free to send in your questions, comments and feedback to email@example.com.
N.B. The French-language version of the app is now available. Please read the above message regarding the French app.
Menstrual Assessment Chart (PBAC)
Chart in PDF format
“Me”, a period flow assessment app is also available.
Apple Store: apple.co/1N93E6h
Google Play Store: bit.ly/1SBl8L8
A bandage is not enough.
HELP SPREAD THE WORD ABOUT INHERITED BLEEDING DISORDERS.
Click here for more information about this important public awareness and outreach campaign or to download promotional material.
You and your family depend on research...
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