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On July 14, 2010 in Buenos Aires, Nichan Zourikian, physiotherapist at the Sainte-Justine Hospital Hemostasis Centre in Montreal was awarded the World Federation of Hemophilia (WFH) Inga Marie Nilsson Award. This award was created in 2000 in honour of distinguished physician and clinical scientist Inga Marie Nilsson (1923–1999) of Sweden. Professor Nilsson was a pioneer in hemophilia research and treatment. Her preventive approach to treatment, hemophilia prophylaxis, has become the guiding principle for treatment centres around the world.

The award is given to an individual or pair of WFH volunteers who have contributed substantially with leadership and initiative to advancing the WFH mission to improve hemophilia care, especially in emerging countries. It is presented every two years at the WFH World Congress. The award includes a monetary prize funded by Professor Nilsson’s family and Octapharma. This prize is directed in its entirety toward the WFH project championed by the recipient of the Inga Marie Nilsson Award. Previous Canadian recipients of this award include Manitoban physiotherapist Kathy Mulder (2006) and Drs. Poon and Luke (2004).

Nichan has been a leader in hemophilia care provincially, nationally and internationally. At the provincial level, he has participated in numerous workshops such as the Quebec Chapter family weekends. Other physiotherapists in hemophilia care within Canada look up to Nichan for his guidance and expert opinion. He has participated in CHS working groups for the Passport to well-being program and the National Family Inhibitor workshops and assisted with the development of various CHS publications such as All About Inhibitors and All About Hemophilia. He has been a co-author on several group-published articles in Haemophilia. Internationally, Nichan Zourikian has been a member of the WFH Musculoskeletal Committee for more than ten years. As a member of the International Prophylaxis Study Group, he helped co-develop the Hemophilia Joint Health Score. He has presented at many WFH World Congresses and has volunteered for WFH twinning and education programs. He prepared and presented physiotherapy-hemophilia workshops in many emerging countries: Senegal, Lebanon, Armenia, Georgia, Bosnia, Serbia, Romania, Tunisia, Syria, Jordan, China, Moldova, Macedonia, Albania, Belarus.

The CHS would like to congratulate Nichan on this highly-deserved recognition.

The Canadian Hemophilia Society is pleased to announce that the second edition of All About Hemophilia: A Guide for Families is now available. All About Hemophilia is a comprehensive resource for parents, healthcare providers and other caregivers that brings together detailed medical information, evidenced-based recommendations, practical tips, and real life stories.

For the second edition, the original chapters have been thoroughly revised and updated and four new chapters have been added covering the topics of prophylaxis, symptomatic carriers, sports and physical activities and transition to adult care. Copies of the second edition of All About Hemophilia: A Guide for Families have been distributed to HTCs across the country. To obtain additional copies, please contact the CHS National Office. Individual chapters of All About Hemophilia are available for download in PDF format.

We are pleased to announce that all the CHS videos are now available on the CHS Web site for viewing.

30-second and 60-second Public Service Announcements (PSAs)
Powerful 30-second and 60-second videos to raise awareness and funds.

CHS public awareness video
A comprehensive look at the Canadian Hemophilia Society, inherited bleeding disorders, safety of the blood supply, complications of hemophilia such as inhibitors and our hope for the future.

Self-Infusion: Confidence, Autonomy, Freedom
A video starring young people with bleeding disorders describing their journey to learn to self-infuse clotting factor concentrates and the difference this has made in their lives.

Hemophilia: What School Personnel Should Know
Designed for teachers and other personnel in a school with a student who has hemophilia. Properly informed, school staff can ensure that a child with hemophilia gets the care he needs, and that he feels accepted in his school environment.

HELP SPREAD THE WORD ABOUT INHERITED BLEEDING DISORDERS.

Click here for more information about this important public awareness and outreach campaign or to download promotional material.