CHS on facebook and YouTube
Submission on the funding of extended half‐life factor IX concentrates
Click here to read the CHS recommendations.
Alprolix, a longer half-life factor IX, approved by Health Canada
Hemophilia Today (HT) interviewed two physicians who were closely involved with the development and clinical trials of Alprolix.
Click here for the full interview.
E-novella spreading the word on bleeding disorders launched on Wattpad
Playing off the popular Harlequin romance genre, ‘A Negative’ tells the story of a young woman unknowingly living with von Willebrand disease. We’ve published the e-novella on Wattpad – the world’s largest online community of writers and readers – in order to connect with young women across Canada. This unique approach introduces the issue into a different medium, enabling us to speak to and educate an engaged but unsuspecting audience.
CLICK HERE for the press release.
If you can’t donate blood, recruit an ally!
One of the goals of our work since then has been to better explain the justification for the deferral and end the student boycotts of blood donor clinics, instituted to protest the indefinite deferral.
One of the group members came up with the idea of 'Ally Blood Donor Clinics' in which a person who cannot donate (for whatever reason) would bring a person to donate in his/her place. One 'Ally Blood Donor Clinic' was held in Toronto so far. Two more are being organized by CBS in London (July 25) and Vancouver (August 1).
We invite you to spread this message among people in the bleeding disorder community, many of whom cannot donate because they receive(d) clotting factor concentrates, with the goal of bringing allies to donate.
2013 CHS Annual Report
Products in the pipeline
Click here for more details.
International Frank Schnabel Award given to David Page
Named in honour of WFH founder Frank Schnabel, this prestigious award is given to an individual with hemophilia, an inherited bleeding disorder, or to a family member, who has contributed significantly in furthering the mission and goals of the WFH.
Congratulations David! An esteemed acknowledgment and well-deserved!
Invitation to families of children with bleeding disorders to participate in an interview-based research study
Participation is open to children and youth ages 5-25 years old living with a bleeding disorder (including: hemophilia, von Willebrand disease, and other rare bleeding disorders), and their families (parents and siblings).
Click here for more details.
2014 CHS research grants awarded
CHS Dream of a Cure Research Program
The CHS / Pfizer Care Until Cure Research Program
The Canadian Hemophilia Society – Novo Nordisk Canada Psychosocial Research Program
The CHS/AHCDC/CSL Behring Hemostasis Fellowship Program
The Canadian Hemophilia Society - Baxter Canada Inherited Bleeding Disorders Fellowship Program for Nurses and Allied Health Care Professionals
Invitation to patients with an inhibitor to participate in market research study
Your privacy is paramount to us and as such they are committed to the strictest confidentiality of your identities and responses. The results of their surveys are analyzed and reported in aggregate. Your identity is never revealed to anyone including the study sponsors.
At this time, the survey is only available in English.
If you are interested in the study, please contact email@example.com.
Vocational assessment tool
Click here to download and print the vocational assessment tool.
Also available is a list of Website links related to career planning and various scholarship programs. Click here to access the list.
You and your family depend on research...
Hemophilia Today - March 2014
A bandage is not enough.
HELP SPREAD THE WORD ABOUT INHERITED BLEEDING DISORDERS.
Click here for more information about this important public awareness and outreach campaign or to download promotional material.
Make a difference - Help save lives
We can stop the suffering of those living with hemophilia and other bleeding disorders. But we can't do it alone. Only with the generous financial support of caring Canadians can we make our dream come true.
To support us