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coderouge 2012 - 1st Canadian Conference on Bleeding Disorders in Women
ON MAY 25, BE PART OF HISTORY BY ATTENDING THE
1st CANADIAN CONFERENCE ON BLEEDING DISORDERS IN WOMEN!
1st CANADIAN CONFERENCE ON BLEEDING DISORDERS IN WOMEN!
CLICK HERE to register.
International Partnership Training workshop
February 11-12, 2012 - INTERNATIONAL PARTNERSHIP TRAINING WORKSHOP
In an effort to provide support, guidance and professional development opportunities to CHS chapters and Canadian hemophilia treatment centres, a workshop is being offered to mentor those already involved in twinning partnerships and those planning or wanting to initiate such projects aimed at enhancing organizational capacity and supporting hemophilia care in developing countries.
Full sponsorships are offered. Registration closed.
For more information, please click here.
In an effort to provide support, guidance and professional development opportunities to CHS chapters and Canadian hemophilia treatment centres, a workshop is being offered to mentor those already involved in twinning partnerships and those planning or wanting to initiate such projects aimed at enhancing organizational capacity and supporting hemophilia care in developing countries.Full sponsorships are offered. Registration closed.
For more information, please click here.
Promising breakthrough in gene therapy for hemophilia B
Promising breakthrough in gene therapy for hemophilia B. Click here to read more.
Other related articles:
Treatment for Blood Disease Is Gene Therapy Landmark
by Nicholas Wade | The New York Times
Gene Therapy Shows Promise for Treating Hemophilia
by Alice Park | Time
Other related articles:
Treatment for Blood Disease Is Gene Therapy Landmark
by Nicholas Wade | The New York Times
Gene Therapy Shows Promise for Treating Hemophilia
by Alice Park | Time
Paris awaits Ryanne Radford, winner of the Karttik Shah Fellowship
We are happy to announce that Ryanne Radford (Alberta) was selected as the 2012 recipient of the Karttik Shah Fellowship, giving her the incredible opportunity to attend the WFH 2012 World Congress to be held in Paris.
Hemophilia Today will feature Ryanne's report in the issue following the event. We congratulate Ryanne and wish her a very enriching experience!
Dr. David Lillicrap and Dr. Paula James named Researchers of the Year in Chicago!
The CHS is happy to share the good news that Queen’s University bleeding disorder experts Dr. David Lillicrap and Dr. Paula James were named Researcher of the Year by the National Hemophilia Foundation in Chicago for their work in helping to improve the lives of patients with bleeding disorders. The pair earned the distinction for their ongoing clinical, translational and basic studies of the inherited bleeding disorders - hemophilia and von Willebrand disease. The CHS congratulates both of them for this well-deserved recognition. Read more here .
Warning about use of non-sterile alcohol wipes
Please see below a link to the National Hemophilia Foundation (U.S.) advisory issued on October 26 warning of potentially unsafe alcohol wipes used to clean skin before infusions. The advisory recommends that individuals should not use 'non-sterile' wipes and should procure replacements. A quick survey of Canadian companies in the concentrate field reveals this is a problem in Canada as well. Most clotting factor concentrates in Canada are shipped with wipes that are not guaranteed sterile. You can also download a summary chart of alcohol wipes used in Canada.
NHF Medical Advisory
Summary chart for Canada
NHF Medical Advisory
Summary chart for Canada
Hemophilia Today - November 2011
HERO: An online study of the impact of hemophilia A and B
HERO: An online study of the impact of hemophilia A and B on patients and families - The Canadian Hemophilia Society (CHS) would like to inform you of the HERO (Hemophilia Experiences Results Opportunities) survey and provide you the opportunity to take part if you so choose. INVITATIONNote that for each survey completed in your province, a donation of $50 will be made to your chapter. Please distribute widely.
Tainted Blood: battles for compensation continue internationally
A group of British hemophiliacs are lobbying for a full public inquiry into the tainted blood tragedy of the 1970s and 1980s in the U.K., and are requesting adequate compensation. They have produced a video on YouTube to document the lives of some victims of the contaminated blood disaster in the UK. It includes quotes from those affected, medical personnel working in the phamaceutical industry and government officials. It's around 20 minutes - set to music, with pictures of all those who took part in the project.
Tainted Blood - Betrayal and Lies
To learn more about their efforts, this committee of volunteers also have a Web site:
www.taintedblood.info
Tainted Blood - Betrayal and Lies
To learn more about their efforts, this committee of volunteers also have a Web site:
www.taintedblood.info
Make a difference - Help save lives
We can stop the suffering of those living with hemophilia and other
bleeding disorders. But we can't do it alone. Only with the generous
financial support of caring Canadians can we make our dream come true.
To support us
The Canadian Museum for Human Rights (CMHR) interested in the tainted blood tragedy
Did the Canadian tainted blood tragedy have an impact on you, a member of your family or friend(s)?
If it did and you are interested in telling your story, we’d like to hear from you.
The Canadian Museum for Human Rights (CMHR), currently under construction in Winnipeg, is seeking submissions of personal stories and experiences from Canadians, which would help shape the permanent exhibitions and public programs of the Museum. The stories will become part of the CMHR archive of oral histories so that others can learn from the experiences. More information can be found on their Web site at humanrightsmuseum.ca/share-your-story.
Click here to read more.
A bandage is not enough.
HELP SPREAD THE WORD ABOUT INHERITED BLEEDING DISORDERS.
Click here for more information about this important public awareness and outreach campaign or to download promotional material.
Copyright © 2012 / Canadian Hemophilia Society / All Rights Reserved 