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Pressing Needs to be Addressed

Our ultimate goal is to discover a way to help the body produce its own supply of factor proteins and platelets to cure inherited bleeding disorders. Until that day becomes a reality, we are galvanizing our efforts to accurately diagnose these conditions and improve comprehensive care for everyone who is currently enduring the pain and suffering that an inherited bleeding disorder can cause.

To this end we have ten major obstacles to overcome while we continue to search for a cure. We need your help to...

  1. Ensure that every Canadian with an inherited bleeding disorder has access to quality care and treatment.
  2. Prevent children and adults from developing inhibitors to clotting factor concentrates, and providing more effective treatment to those who do.
  3. Ensure accurate diagnosis for all people suffering from von Willebrand Disease so they can get the quality care and treatment they need.
  4. Address health care issues for women who are carriers, and who often suffer symptoms of mild hemophilia.
  5. Prevent premature deaths caused by complications from inherited bleeding disorders, especially in areas where access to care is more limited.
  6. Address the serious health complications of those infected with HIV and/or Hepatitis C through tainted blood, including access to liver transplants in Canada.
  7. Support families of newly diagnosed children with an inherited bleeding disorder, and ensure they gain access to optimal care and treatment, and they develop the confidence and expertise needed to provide home infusion for their children.
  8. Support youth and adults living with an inherited bleeding disorder, providing up-to-date information and education that will help enable them to make optimal health choices for themselves.
  9. Maintain vigilance to monitor the safety of the blood supply for all Canadians. New threats, such as the transmission of variant Creutzfeldt-Jakob disease (vCJD) through blood products, are constantly emerging.
  10. Improve access to care and treatment for those living in developing countries where currently seventy percent (70%) of people with hemophilia do not survive beyond the age of nineteen (19).