Members

Alberta Porphyria Society
Web site: under construction
E-mail: albertaporphyria@gmail.com


Answering TTP (Thrombotic Thrombocytopenic Purpura)
C/O Sydney Kodatsky, Executive Director
22 Prince George Drive
Toronto, Ontario   M9A 1Y1
Tel.: (416) 792-4656
Web site: www.AnsweringTTP.org
E-mail: answeringttp@gmail.com

Aplastic Anemia and Myelodysplasia Association of Canada (AAMAC)
11181 Yonge Street, Suite 321
Richmond Hill, Ontario  L4S 1L2
Tel.: 905-780-0698
Tel.: 1-888-840-0039
Fax: 905 780-1648
Web site: www.aamac.ca
E-mail: info@aamac.ca


Canadian Association of Paroxysmal Nocturnal Hemoglobinuria (PNH)
C/O Barry Katsof, President
1449 St. Alexander Street,Suite 207
Montreal, Quebec, H3A 2G6
Tel.: 514 288 9888
Fax: 514 288 1452
Cell.: 514 983 8864
Web site: www.pnhca.org
E-mail: info@pnhca.org

Canadian Hemophilia Society (CHS)
400-1255 University Street
Montreal, Quebec  H3B 3B6
Tel.: 514-848-0503
Tel.: 1-800-668-2686
Fax: 514-848-9661
Web site: www.hemophilia.ca
E-mail: chs@hemophilia.ca


Canadian Hereditary Angioedema Network(CHAEN)
c/o #705 South Tower
3031 Hospital Drive NW
Calgary, Alberta  T2N 2T8
Web site: www.haecanada.com
E-mail: info@haecanada.com / tbowen@pol.net


Canadian Immunodeficiencies Patient Organization (CIPO)
362 Concession 12 East, RR#12
Hastings, Ontario  K0L 1Y0
Tel.: 1-877-262-2476
Fax: 705-696-1386
Web site: www.cipo.ca
E-mail: info@cipo.ca


Canadian Organization for Rare Disorders (CORD)
151 Bloor Street West, Suite 600
Toronto, Ontario  M5S 1S4
Tel : 416-969-7464
Tel.: 1-877-302-7273
Fax: 416 969-7420
Web site: www.raredisorders.ca
E-mail: info@raredisorders.ca


Fanconi Canada
P.O. Box 38157
Toronto, Ontario  M5N 3A9
Tel :  416-489-6393
Fax:  416-489-6393
Web site: www.fanconicanada.org
E-mail: admin@fanconicanada.org


HAE Canada  (Hereditary Angioedema)
Web site: www.haecanada.org
E-mail: della.cogar@haecanada.org


Quebec Sickle Cell Anemia Association (QSA)
8260 Phèdre
Laval, Quebec  H7A 1H3
Tel.: 514-830-4782
Web site: www.anemie-falciforme.org
E-mail: wilsonsanon@hotmail.com


Sickle Cell Association of Ontario (SCAO)
3199 Bathurst Street, Suite 202
Toronto, Ontario  M6A 2B2
Tel: 416-789-2855
Fax: 416-789-1903
Web site: www.sicklecellontario.com
E-mail: sicklecell@look.ca


Sickle Cell Awareness Group of Ontario (SCAGO)
1280 Finch Ave. West, Suite 517
North York, Ontario  M3J 3K6
Tel: 416-745-4267
Web site: www.sicklecellanemia.ca
E-mail: info@sicklecellanemia.ca


Sickle Cell Disease Parents’ Support Group of Ottawa (SCDPSC)
Children's Hospital of Eastern Ontario
C/O Ms. Unita Louis, Admissions, Children's Hospital of Eastern Ontario
401 Smyth Road
Ottawa, Ontario  K1H 8L1
Tel.: 613-737-7600, ext. 2310
Facebook page: http://www.facebook.com/group.php?gid=63182876531  
E-mail: louis@cheo.on.ca


Thalassemia Foundation of Canada (TCF)
338 Falstaff Avenue, suite 204
North York,  ON  M6L 3E7
Tel. 416-242-THAL (8425)
Fax: 416-242-8425
Web site:  www.thalassemia.ca
E-mail: info@thalassemia.ca