Requests from inside Canada: You may order from the CHS Catalogue of Educational Material by telephone, mail, fax or e-mail. Please indicate the title(s) and the number of copies required.
Tel.: 514-848-0503 ext.221
Toll-free: 1-800-668-2686
Fax: 514-848-9661
Canadian Hemophilia Society
400 - 1255 Kennedy Street
Montreal, Quebec H3B 3B6
chs@hemophilia.caRequests from outside Canada: Much of the educational material produced by the CHS is available for immediate download in PDF format. When a document is available in PDF format the CHS will not ship a paper copy outside Canada. The CHS will provide single copies of material not available in PDF format when supplies are sufficient. Please contact the National Office of the Canadian Hemophilia Society for more information.
The World Federation of Hemophilia and many of its National Member Organizations publish excellent educational material. Visit
www.wfh.orgTo view and print these documents,
Adobe Reader must be installed on your system. For a free version,
click here.
Acquired HemophiliaA general information booklet for patients, families and healthcare providers about acquired forms of hemophilia. Developed and published by the Canadian Association of Nurses in Hemophilia Care (CANHC).
A Home Treatment Guide and NotebookA colourfully illustrated guide and educational tool to assist individuals on home infusion. Developed by the Western Canadian Hemophilia Nurses. Published by Biomedical Communications, Health Sciences Centre, Winnipeg. Only available in
PDF.
All About CarriersA comprehensive guide for carriers of hemophilia A or B. Developed and published by the Canadian Hemophilia Society. Spiral bound.
PDFAll About InhibitorsA comprehensive guide about inhibitors for affected individuals and their families. Developed and published by the Canadian Hemophilia Society. Spiral bound.
PDFAll About Hemophilia: A Guide for Families -
Second EditionA comprehensive resource for families raising a child with hemophilia. First developed and published by the Canadian Hemophilia Society in 2001.
For the second edition, the original chapters have
been thoroughly revised and updated and four new chapters have been
added covering the topics of prophylaxis, symptomatic carriers, sports
and physical activities and transition to adult care. Available through the
Canadian hemophilia treatment centres.
PrefaceChapter 1 - An Introduction to Hemophilia
Chapter 2 - How a Child Gets Hemophilia
Chapter 3 - Comprehensive Care for Hemophilia
Chapter 4 - Management of Bleeds
Chapter 5 - Clotting Factor Therapy
Chapter 6 - The Role of Prophylaxis
Chapter 7 - Home Infusion
Chapter 8 - Complications of Hemophilia
Chapter 9 - Mild and Moderate Hemophilia
Chapter 10 - Growing with Hemophilia
Chapter 11 - Staying Healthy
Chapter 12 - Physical Activity, Exercise and Sports
Chapter 13 - Transitions Toward Independence
Chapter 14 - Symptomatic Carriers of Hemophilia
Chapter 15 - Family Perspectives
Chapter 16 - The Future of Hemophilia Care
Chapter 17 - For More Information
GlossaryAll About von Willebrand Disease - Second EditionA comprehensive guide for people with von Willebrand disease and their families. Developed and published by the Canadian Hemophilia Society and revised in 2007. Spiral bound.
PDFAre You Ready For This? Taking Control of Your Own FutureA booklet designed for adolescents with hemophilia. Developed and published by the Eastern Canadian Hemophilia Nurses.
Assessment & Treatment of Joint and Muscle BleedsA booklet designed to help people manage bleeds effectively at home. Developed in 2000 by Kathy Mulder, Physiotherapist, Manitoba Bleeding Disorders Clinic. A companion guide to the Travel Guide for Persons with Bleeding Disorders.
Bernard Soulier Syndrome – An Inherited Bleeding DisorderThe latest in the series on Rare Factor Deficiencies, this document is a general information booklet about the Bernard Soulier Syndrome for patients, families and healthcare providers. This booklet was developed by the Canadian Association of Nurses in Hemophilia Care (CANHC) and published by the Canadian Hemophilia Society.
PDFBleed Stops Here (The)An activity book for children with hemophilia and other inherited bleeding disorders. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. Spiral bound.
Challenges, Choices, Decisions: A guide on orthopedic surgery for people with hemophilia and inhibitors
Until fairly recently, the risk of uncontrolled bleeding has prohibited most surgeries for patients with inhibitors. In the past decade, the availability of bypassing agents to manage bleeding during surgery has allowed procedures to be performed that previously were not considered possible. This new educational resource was developed as a guide to help hemophilia patients and their families understand what is involved in orthopedic surgery in the presence of inhibitors.
PDFCyklokapron - A Guide for Patients and their CaregiversA
revised version of this simple brochure providing basic information on the uses and
administration of this drug. Developed by the Canadian Association of
Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia
Society.
PDFDesmopressin, A Guide for Patients and CaregiversA simple brochure providing basic information on the uses and administration of DDAVP, Octostim, Octostim Spray and Stimate. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.
PDFDiane Dino's Dilemma: A Story of von Willebrand DiseaseA storybook for children about von Willebrand Disease for ages 8 and up. Published by Aventis.
Disorders of Platelet FunctionAn Information Booklet for Patients,Families and Health Care Providers by Sara J. Israels, M.D. and Margaret L. Rand, Ph.D.
PDFFactor II Deficiency - An Inherited Bleeding DisorderFactor II (FII) deficiency (also called hypoprothrombinemia or prothrombin deficiency) is a rare coagulation disorder. People affected by this deficiency and those close to them have very little written information about it. This booklet explains the causes of FII deficiency, its symptoms and available treatments.We hope that this information will help answer your questions.
PDFFactor V Deficiency - An Inherited Bleeding DisorderFactor V deficiency, also called parahemophilia or Owren’s disease, is a very rare coagulation disorder. About one person in a million may be affected by this deficiency. Only 150 cases have been identified worldwide to date.
PDFFactor VII Deficiency - An Inherited Bleeding DisorderA general information booklet about Factor VII Deficiency for patients, families and healthcare providers. Devloped by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.
PDFFactor X Deficiency - An Inherited Bleeding DisorderFactor X (pronounced 10) deficiency is a very rare blood coagulation disorder with complications that vary with the severity of the disorder. This deficiency is not well known, even among health professionals. People affected by this deficiency and those close to them have very little written information about it. This booklet therefore seeks to provide information for people trying to cope with this health problem. It explains the causes of the deficiency, symptoms, possible complications, and available treatments.
PDFFactor XI Deficiency – An Inherited Bleeding DisorderThe latest in our series on Factor Deficiencies, this document is a general information booklet about Factor XI Deficiency for patients, families and healthcare providers. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.
PDFFactor XII Deficiency – An Inherited Bleeding DisorderSevere Factor XII deficiency is a very rare condition and is not well known, even among health professionals. The purpose of this booklet is to describe the deficiency with the hope that it will permit those affected to better understand the issues.
PDFFactor XIII Deficiency, an Inherited Bleeding DisorderA general information booklet about Factor XIII Deficiency for patients, families and healthcare providers. Devloped by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.
PDFFamily Planning Options: A Guide for Serodiscordant CouplesMany heterosexual couples are interested in having families, but for those couples who are serodiscordant (one partner is HIV and the other is HIV-), there are specific challenges to be faced. How do you have a family of your own without risking your health and the health of your family members?
PDFFibrinogen or Factor I Deficiency – An Inherited Bleeding DisorderFactor I (or fibrinogen) deficiency is a very rare inherited disorder with complications that vary with the severity of the disorder. It is not well known, even among health professionals. People affected by this disorder and those close to them have very little written information about it. This booklet therefore seeks to provide information for people trying to cope with this health problem. It explains the causes of the disorder and currently available treatments.
PDFGlanzmann Thrombasthenia, an Inherited Bleeding DisorderA general information booklet about Glanzmann Thrombasthenia for patients, families and healthcare providers. Devloped by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.
PDF
Go For It!A guide on physical activity and sports for people with hemophilia and related bleeding disorders. Developed and published by the World Federation of Hemophilia. Spiral bound.
Guidelines Published by the Society of Obstetricians and Gynaecologists of Canada (SOGC)SOGC Clinical Practice Guidelines on the Gynaecological and Obstetric Management of Women with Inherited Bleeding Disorders were published in the July, 2005 issue of the Journal of Obstetrics and Gynaecology Canada. Publication of these guidelines was one of the key recommendations arising from the 2003 1st Canadian State of the Art Conference on von Willebrand Disease organized by the Canadian Hemophilia Society. The CHS would like to acknowledge the authors: Drs. Christine Demers, Michèle David, Christine Derzko and Joanne Douglas whose expertise and efforts made this achievement possible. The guidelines are available in PDF format. This material is under copyright and is accessible for educational purposes only. It cannot be copied or reproduced without approval from The Society of Obstetricians and Gynaecologists of Canada.
PDF
Hemophilia from Diagnosis to Homecare: Support for the JourneyEducational package designed to help new parents work through the challenges of raising a child with hemophilia. Also include two activity books for children. Developed by a hemophilia nurse coordinator, a mother of two boys with hemophilia, and several youth affected by bleeding disorders from Winnipeg, Manitoba.
PDFHemophilia: What School Personnel Should KnowAn information booklet about hemophilia for teachers and other school personnel. Developed by the Atlantic Hemophilia Nursing Group of the Canadian Association of Nurses in Hemophilia Care (CANHC).
PDFHepatitis C: An Information Booklet for People Infected With the Hepatitis C Virus, and Their Families and FriendsA comprehensive guide to the hepatitis C virus including: diagnosis, symptoms, treatment options, healthy lifestyle and psychosocial aspects of the disease.
PDFHepatitis C: Common Disabling Symptoms and Treatment Side EffectsA resource outlining some of the more common disabling symptoms of hepatitis C and side effects of hepatitis C treatments, including sources of financial assistance.
PDFHepatitis C - Dealing with DiscomfortsYou may have discomforts – such as fatigue, nausea, vomiting, lack of appetite, diarrhea, taste changes – from the symptoms of hepatitis C or from the side effects of prescribed medicines. This flyer offers nutrition tips for people with hepatitis C. Available only in
PDF.
Hepatitis C - Helping you feel your bestHepatitis C harms your liver. Your liver plays many important roles. It deals with everything you eat and drink. A healthy lifestyle can help you feel your best and help your body cope with the hepatitis C virus. This flyer offers nutrition tips for people with hepatitis C. Available only in
PDF.
Hepatitis C: Nutrition Care - Canadian Guidelines for Healthcare ProvidersThese guidelines are designed to serve as a general framework to assist decision making for nutritional management of patients infected with the hepatitis C virus and are based on the best information available at the time of publication. Available only in
PDF.
Information Booklet on Mild HemophiliaMild hemophilia can be very serious and even life-threatening if injuries or bleeds are not treated promptly and adequately. This new information booklet for people living with mild hemophilia and their families was developed by the Atlantic Hemophilia Nurses Group of the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by Bayer HealthCare.
PDF(The) Management of Women with Bleeding DisordersThe purpose of this work is to provide for women with bleeding disorders suggestions on
1. the optimal management through multidisciplinary clinics,
2. the laboratory investigation of bleeding disorders,
3. the medical treatment of menorrhagia and
4. the management of pregnancy.
PDF
Pain: The Fifth Vital SignA resource on managing pain for people with bleeding disorders.
PDFTips for finding childcare: A Guide for parents of children with bleeding disordersStarting childcare is a major step for families living with a bleeding disorder. For both parents and children, the transition is an important part of learning how to live with a bleeding disorder. However, making decisions about childcare and finding the right caregiver can be a challenging process. This booklet provides information to help parents of children with bleeding disorders assess their childcare needs and suitable options, with steps for finding the right caregiver. The booklet also outlines basic medical, health and safety information that caregivers need to know.
PDFUsing an Implantable Venous Access Device (IVAD) at HomeA general information guide to using an Implantable Venous Access Device (IVAD) to infuse factor concentrates. Developed and published by the Northern Alberta Comprehensive Hemophilia Centre. Booklet.
Von Willebrand Disease - The Most Common Bleeding Disorder: Your Questions AnsweredA general information booklet about the symptoms, diagnosis, and treatment of VWD. Developed and published by the Canadian Hemophilia Society.
PDFVon Willebrand Disease: What School Personnel Should KnowAn information booklet about von Willebrand Disease for teachers and other school personnel. Developed by the Atlantic Hemophilia Nursing Group of the Canadian Association of Nurses in Hemophilia Care (CANHC).