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Hemophilia

Acquired hemophilia


Acquired hemophilia
Acquired hemophilia has been revised! Produced by the Canadian Association of Nurses in Hemophilia Care and the CHS, and transformed from a booklet format, it is now a seven-panel pamphlet with all the key information still available: what is acquired hemophilia, signs and symptoms, available treatments.



All About Hemophilia - A Guide for Families


All About Hemophilia: A Guide for Families - Second Edition
A comprehensive resource for families raising a child with hemophilia. First developed and published by the Canadian Hemophilia Society in 2001. For the second edition, the original chapters have been thoroughly revised and updated and four new chapters have been added covering the topics of prophylaxis, symptomatic carriers, sports and physical activities and transition to adult care. Available through the Canadian hemophilia treatment centres.

Chapter 1 - An Introduction to Hemophilia

Chapter 2 - How a Child Gets Hemophilia

Chapter 3 - Comprehensive Care for Hemophilia

Chapter 4 - Management of Bleeds

Chapter 5 - Clotting Factor Therapy

Chapter 6 - The Role of Prophylaxis

Chapter 7 - Home Infusion

Chapter 8 - Complications of Hemophilia

Chapter 9 - Mild and Moderate Hemophilia

Chapter 10 - Growing with Hemophilia

Chapter 11 - Staying Healthy

Chapter 12 - Physical Activity, Exercise and Sports

Chapter 13 - Transitions Toward Independence

Chapter 14 - Symptomatic Carriers of Hemophilia

Chapter 15 - Family Perspectives

Chapter 16 - The Future of Hemophilia Care

Chapter 17 - For More Information

Challenges, Choices, Decisions: A Guide on Orthopedic Surgery for People with Hemophilia


Challenges, Choices, Decisions: A Guide on Orthopedic Surgery for People with Hemophilia
This educational resource, has been developed as a guide to help hemophilia patients, not affected by an inhibitor, and their families understand what is involved in orthopedic surgery. It has been adapted from the original booklet published in 2008 for people with hemophilia and inhibitors. Available in PDF only.


Desmopressin - A Guide for Patients and Caregivers


Desmopressin - A Guide for Patients and Caregivers
A 2015 revised version of this simple brochure providing basic information on the uses and administration of DDAVP, Octostim and Octostim Spray. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.


Emergency Care for Patients with Hemophilia


Emergency Care for Patients with Hemophilia
Guidelines on the treatment and management of hemophilia emergencies including recommended dosage and contact information for Hemophilia Treatment Centres in Canada and the United States are available.



Hemophilia from Diagnosis to Homecare: Support for the Journey


Hemophilia from Diagnosis to Homecare: Support for the Journey
Educational package designed to help new parents work through the challenges of raising a child with hemophilia. Also include two activity books for children. Developed by a hemophilia nurse coordinator, a mother of two boys with hemophilia, and several youth affected by bleeding disorders from Winnipeg, Manitoba.


Hemophilia: What School Personnel Should Know


Hemophilia: What School Personnel Should Know
One of the most popular booklets of the CHS educational material catalogue has just been revised. Different colours, different design, different format, and additional content to improve and enhance the already highly informative text. The booklet was developed with the efforts, knowledge and expertise of the Atlantic Hemophilia Nurses group and was made possible through unrestricted educational grants provided by Bayer.
As with the previous version, a DVD is available to accompany the booklet as a complementary resource.


Home Treatment Guide: for people with bleeding disorders


Home Treatment Guide: for people with bleeding disorders
2nd Edition
This Home Treatment Guide was developed by hemophilia nurses working with patient and families affected by hemophilia. The guidebook is designed to assist patients in the safe home treatment of bleeding disorders by providing basic information in an easy- to-use format.



Identifying common joint & muscle bleeds


Identifying common joint & muscle bleeds
An information booklet designed to help people living with bleeding disorders identify common joint and muscle bleeds in their earliest stages, so that proper treatment can begin as soon as possible. It is written to help people of all ages perform a self-assessment and to help parents assess their children. Developed by the Canadian Physiotherapists in Hemophilia Care (CPHC).


Information Booklet on Mild Hemophilia


Information Booklet on Mild Hemophilia
Mild hemophilia can be very serious and even life-threatening if injuries or bleeds are not treated promptly and adequately. This information booklet for people living with mild hemophilia and their families was developed by the Atlantic Hemophilia Nurses Group of the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by Bayer HealthCare.





In the Driver's Seat


In the Driver's Seat
This workbook was developed by members of the Canadian Physiotherapists in Hemophilia Care (CPHC) to guide adults with bleeding disorders through an organized and thoughtful approach to decision-making around physical activities.