All About Hemophilia: A Guide for Families -
A comprehensive resource for families raising a child with hemophilia. First developed and published by the Canadian Hemophilia Society in 2001. For the second edition, the original chapters have been thoroughly revised and updated and four new chapters have been added covering the topics of prophylaxis, symptomatic carriers, sports and physical activities and transition to adult care. Available through the Canadian hemophilia treatment centres.
- Chapter 1 - An Introduction to Hemophilia
- Chapter 2 - How a Child Gets Hemophilia
- Chapter 3 - Comprehensive Care for Hemophilia
- Chapter 4 - Management of Bleeds
- Chapter 5 - Clotting Factor Therapy
- Chapter 6 - The Role of Prophylaxis
- Chapter 7 - Home Infusion
- Chapter 8 - Complications of Hemophilia
- Chapter 9 - Mild and Moderate Hemophilia
- Chapter 10 - Growing with Hemophilia
- Chapter 11 - Staying Healthy
- Chapter 12 - Physical Activity, Exercise and Sports
- Chapter 13 - Transitions Toward Independence
- Chapter 14 - Symptomatic Carriers of Hemophilia
- Chapter 15 - Family Perspectives
- Chapter 16 - The Future of Hemophilia Care
- Chapter 17 - For More Information
Challenges, Choices, Decisions: A Guide on Orthopedic Surgery for People with Hemophilia
This educational resource, has been developed as a guide to help hemophilia patients, not affected by an inhibitor, and their families understand what is involved in orthopedic surgery. It has been adapted from the original booklet published in 2008 for people with hemophilia and inhibitors. Available in PDF only.
Desmopressin - A Guide for Patients and Caregivers
A 2015 revised version of this simple brochure providing basic information on the uses and administration of DDAVP, Octostim and Octostim Spray. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.
Hemophilia from Diagnosis to Homecare: Support for the Journey
Educational package designed to help new parents work through the challenges of raising a child with hemophilia. Also include two activity books for children. Developed by a hemophilia nurse coordinator, a mother of two boys with hemophilia, and several youth affected by bleeding disorders from Winnipeg, Manitoba.
Hemophilia: What School Personnel Should Know
An information booklet about hemophilia for teachers and other school personnel. Developed by the Atlantic Hemophilia Nursing Group of the Canadian Association of Nurses in Hemophilia Care (CANHC).
Identifying common joint & muscle bleeds
An information booklet designed to help people living with bleeding disorders identify common joint and muscle bleeds in their earliest stages, so that proper treatment can begin as soon as possible. It is written to help people of all ages perform a self-assessment and to help parents assess their children. Developed by the Canadian Physiotherapists in Hemophilia Care (CPHC).
Information Booklet on Mild Hemophilia
Mild hemophilia can be very serious and even life-threatening if injuries or bleeds are not treated promptly and adequately. This information booklet for people living with mild hemophilia and their families was developed by the Atlantic Hemophilia Nurses Group of the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by Bayer HealthCare.
Home Treatment Guide: for people with bleeding disorders - 2nd Edition
This Home Treatment Guide was developed by hemophilia nurses working with patient and families affected by hemophilia. The guidebook is designed to assist patients in the safe home treatment of bleeding disorders by providing basic information in an easy- to-use format.
Emergency Care for Patients with Hemophilia