MyCBDR: The best way to report treatments and bleeds to your health care team.
This flyer has been produced by the CHS to promote the use of MyCBDR to patients. It includes, among other things, a list of the benefits of using MyCBDR, its special features and information on how to register.
Passport to well-being
In 2004, the Canadian Hemophilia Society, with the support of Baxter BioScience initiated a new program aimed at empowering people with bleeding disorders, at all stages of their lives, to maximize their quality of life.
Now, in 2013, with the participation of a new sponsor for the program, Bayer HealthCare, the CHS is proud to present a revised version of the components of the program.
The Passport to well-being program provides people with bleeding disorders, at all stages of their lives, with information, skills and strategies to enable them to maximize their quality of life.
Charting Your Course (revision to come)
Passport to well-being is designed around six modules which focus on:
Improving the treatment of bleeding disorders through innovative monitoring of product usage
Helping patients to develop personalized fitness plans to improve overall health
Homecare: The Road to Independence
Helping patients take greater control of their disease through home treatment
Roadmap for Managing Pain
Raising awareness of ways to manage the pain that is so common to people with bleeding disorders.
Navigating the Emergency Department
Helping people with bleeding disorders prepare for visits to the Emergency Department.
Bon Voyage! Travelling with a Bleeding Disorder
Helping people with bleeding disorders reduce the risks of travel so they can enjoy their adventure to its fullest.
Key messages relating to these themes are communicated through educational booklets, newsletters and workshops targeted at children, adults and caregivers of people with bleeding disorders. Participants in the program receive a personal passport which they have stamped with a visa when they take part in a workshop or related activity.
The CHS wallet travel card contains information about how to access care and treatment when away from home. Among other things, and especially to help globetrotters, the wallet card contains 16 key phrases in English, French and Spanish that can be used in an emergency situation.
Identifying common joint & muscle bleeds
An information booklet designed to help people living with bleeding disorders identify common joint and muscle bleeds in their earliest stages, so that proper treatment can begin as soon as possible. It is written to help people of all ages perform a self-assessment and to help parents assess their children. Developed by the Canadian Physiotherapists in Hemophilia Care (CPHC).
Tips for finding childcare: A Guide for parents of children with bleeding disorders
Starting childcare is a major step for families living with a bleeding disorder. For both parents and children, the transition is an important part of learning how to live with a bleeding disorder. However, making decisions about childcare and finding the right caregiver can be a challenging process. This booklet provides information to help parents of children with bleeding disorders assess their childcare needs and suitable options, with steps for finding the right caregiver. The booklet also outlines basic medical, health and safety information that caregivers need to know.
Pain: The Fifth Vital Sign
A resource on managing pain for people with bleeding disorders
Cyklokapron - A Guide for Patients and their Caregivers
A revised version of this simple brochure providing basic information on the uses and administration of this drug. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.
Desmopressin - A Guide for Patients and Caregivers
A 2015 revised version of this simple brochure providing basic information on the uses and administration of DDAVP, Octostim and Octostim Spray. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society.
Dental Care for People with Bleeding Disorders
People with bleeding disorders have the same kinds of dental problems as other people. Regular dental checkups and good oral hygiene can help reduce mouth bleeding and prevent the need for major dental work.
When dental problems occur, however, treatment may require more planning. This booklet includes basic guidelines on how to recognize and cope with dental problems.