Standards of Care

The Canadian Hemophilia Society, in collaboration with other organizations, is trying to establish standards of comprehensive care for HCV in the hemophilia and hepatitis clinics across Canada. Currently, the clinics follow their own guidelines because they are managed and operated independently. This means that care may vary depending on where you live. Until one set of standards of care for all patients are established, you can do the following.

• If you are a person with hemophilia or a related bleeding disorder, make sure that you are in the care of a doctor in a hemophilia treatment centre.
• If you live in a rural community, ask your doctor to contact the nearest hepatitis experts to get information for you.
• Make sure that your doctor is communicating with your liver expert. Ask for copies of correspondence such as consultation letters or reports, etc.
• Don’t be afraid to ask for counselling to help you and your family deal with the issues surrounding your HCV infection.