As an active example of the World Federation of Hemophilia (WFH) vision of Treatment for All, the WFH twinning program has enjoyed success and growth in the past few years.
In 2016, the Canadian Hemophilia Society is twinned with four emerging hemophilia organizations. In addition, one Canadian Hemophilia Treatment Centre (HTC) is twinned with one HTC in a developing country.
By linking hemophilia organizations and treatment centres in developing and developed countries, the twinning program has improved diagnosis and medical attention for people with hemophilia in many countries.
Wyeth (now part of Pfizer) spokesperson, Catherine Béhague, said the company is committed to sponsoring the program “because we believe it brings critical knowledge and treatment options to areas of the world where they otherwise might not have them.”
WFH President, Mark W. Skinner, wrote on April 3, 2008: “The funding provided will support the Twinning activities of the more than 80 Hemophilia Treatment centers and Organizations in the program around the world.”
Feedback from partners in developed countries suggests that twinning is a positive two-way experience that motivates staff and volunteers, attracts youth involvement, and enables both sides to learn from each other.
The WFH annually recognizes the most exceptional organization and treatment centre partnerships with Twins of the Year Awards.
The CHS and the HSB receive the WFH 2015 Hemophilia Organization Twins of the Year Award. Kudos to all who made this twinning such a success both in Bangladesh and Canada.
The World Federation of Hemophilia Organization Twinning Committee was very impressed by the scope of the activities undertaken in 2015 by the Canadian Hemophilia Society (CHS) and the Hemophilia Society of Bangladesh (HSB) twinning including the successful execution and analysis of the first bleeding disorder survey in Bangladesh, the development of a three-year strategic plan for HSB, a successful action planning workshop for lay and medical members of HSB, a webinar to help HSB develop a communications and marketing plan, and the participation of HSB President Nurul Islam at Rendez-vous 2015 held in Halifax which included a presentation on the survey exercise.
Congratulations to the Quebec Chapter and its twin, the Nicaraguan Hemophilia Association, for the WFH 2014 Hemophilia Organization Twins of the Year Award !
The WFH twinning committee was impressed by the scope of the activities undertaken in 2014 including the inauguration of the NMO office, organization of three educational workshops for members, training on self-infusion and prevention, initiation of board training and advocacy training and the continued communication between partners.
The CHS is also proud that in 2010 Canada won both the Hemophilia Organization Twins of the Year Award and the Hemophilia Treatment Centre Twins of the Year Award :
Association tunisienne des hémophiles (ATH)
Canadian Hemophilia Society - Quebec Chapter (CHSQ)
for the following achievements:
- Training of board members on good governance and volunteer skills;
- Development of roles and responsibilities for the board;
- Development of a strategic plan for the organization;
- Provision of psychosocial support for families;
- Training for young people with hemophilia;
- Providing home care workshops.
Delhi (India) - Winnipeg (Canada)
Hemophilia Society (Delhi) - Lions Kidney Hospital & Urology Research Institute
Comprehensive Hemophilia Care Centre of the Manitoba Pediatric Bleeding Disorders Program
for the following achievements:
- City-wide workshop for nurses;
- Educational workshops for families;
- Physiotherapy training;
- Laboratory training;
- Provision of patient assessment tools and patient educational materials.
2010 Twin of the Year Awards Poster
This was our third prize in 3 years given that the 2008 Hemophilia Organization Twins of the Year Award was given to:
Canadian Hemophilia Society
for the following acheivements:
•Initiating outreach to rural areas and to patients with inhibitors
•Continuing the development of patient support groups
•Developing lobbying and advocacy strategies
•Providing training on pharmaceutical relations
•Developing links between both organizations’ youth groups
•Providing a fellowship for a young South African person with hemophilia to attend youth camp in Toronto
2008 Twin of the Year Awards Poster