As an active example of the World Federation of Hemophilia (WFH) vision of Treatment for All, the WFH twinning program has enjoyed success and growth in the past few years.
In 2010, the Canadian Hemophilia Society is twinned with one emerging hemophilia organizations. In addition, one Canadian Hemophilia Treatment Centre (HTCs) is twinned with one HTC in a developing country.
By linking hemophilia organizations and treatment centres in developing and developed countries, the twinning program has improved diagnosis and medical attention for people with hemophilia in many countries.
Wyeth (now part of Pfizer) spokesperson, Catherine Béhague, said the company is committed to sponsoring the program “because we believe it brings critical knowledge and treatment options to areas of the world where they otherwise might not have them.”
WFH President, Mark W. Skinner, wrote on April 3, 2008: “The funding provided will support the Twinning activities of the more than 80 Hemophilia Treatment centers and Organizations in the program around the world.”
Feedback from partners in developed countries suggests that twinning is a positive two-way experience that motivates staff and volunteers, attracts youth involvement, and enables both sides to learn from each other.
The WFH annually recognizes the most exceptional organization and treatment centre partnerships with Twins of the Year Awards. The CHS is proud that the 2008 organization twin award was given to:
&
Canadian Hemophilia Society
for:
•Initiating outreach to rural areas and to patients with inhibitors
•Continuing the development of patient support groups
•Developing lobbying and advocacy strategies
•Providing training on pharmaceutical relations
•Developing links between both organizations’ youth groups
•Providing a fellowship for a young South African person with hemophilia to attend youth camp in Toronto
2008 Twin of the Year Awards Poster
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