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Board of Directors Profiles

Hemophilia Ontario Board of Directors


Amy Griffith




Amy Griffith is entering her second year as a Hemophilia Ontario Board of Directors member, and has been involved in the organization since 2007.  In 2009 she received the James Kreppner Memorial Scholarship, and the Leaders of Tomorrow Award in 2013.  She is also a CODErouge Ambassador, and is dedicated to raising awareness for women with bleeding disorders.

'I don't remember much from when I found out I was diagnosed with von Willebrand Disease.  As a five year old, to me this was an overwhelming amount of medical terms, lots of needle pokes and long hours at the hospital with my parents.  What I do remember is what it felt like to be told I was 'different' or as the doctor's put it, 'special'.  Working simultaneously toward a better tomorrow for those with inherited bleeding disorders, the Hemophilia Ontario Board of Directors and provincial staff have the resources, experiences and access to services that members need to thrive within this community.  This is the best resource that anyone who is affected and their loved ones can have.'


Bojan Pirnat



Bojan Pirnat is a mild Factor VIII hemophiliac originally from the Manitoba Chapter who came to Ontario as a graduate student and decided to stay after completing his MA. Before coming to Toronto he served on the CHS-MB Board of Directors for 3 years and sat on the Communications and Youth Committees.

He is currently part of the National Bangladesh Twinning Committee and recently his work to build a Youth Committee in Bangladesh with his Twinning Counterpart was chosen as a WFH pilot project to twin Canada and Bangladesh’s youth committees.

He also sits on the National Blood Safety and Supply Committee, has recently joined the Advocacy Committee for Hemophilia Ontario, and sits as a member of TCOR Council.

“My life and my family’s life were made immeasurably better by the Hemophilia society, and I would like to put the skills I have acquired to good use helping to maintain and exceed standards of care and service-delivery to people with bleeding disorders. I think it’s important for everyone who has benefited from the hard work of previous generations to give their time and effort to make sure the Hemophilia society will always be there to support people with inherited bleeding disorders.”

Bojan works at a fashion industry firm and has lately been spending his free time reading biographies, listening to comedy podcasts, and cooking.


Darlene Villeneuve





Darlene Villeneuve has previous experience as a Board member of 25 years and delegate to Ontario. She is a committed fundraiser who is employed by the Ottawa Catholic school board as an Educational Assistant. Darlene has hemophilia factor nine and one son with it as well.


Jamie Hill




Jamie Hill is an internal auditor with the Department of National Defense and holds a CPA, CMA designation.  He is, also, a grief counselor and a poet. He has been active in the Hemophilia community for many years. In his spare time he enjoys live theatre, travel and is working on a PhD.  Jamie currently lives in Ottawa and has Factor IX deficiency.


Julia Sek




Julia Sek is a Nurse Manager who has worked with Hemophilia Ontario for many years, serving as the Hemophilia Provincial Coordinator from 2003-2007.  She has created and worked on many initiatives, and continues to advocate for the Health Care and Blood System.

'I want to continue to contribute to a community that has strong advocacy skills and to continue to mentor the youth in the community for Board roles.'


Kwadwo (Michael) Bosompra





Michael, an Account Executive by day, is in his first term as a member of the Hemophilia Ontario Board Of Directors. Prior to that he was a TCOR Council member, a Karttik Shah Fellowship recipient, and a John Plater Fellowship Recipient.

'I personally have benefitted from Hemophilia Ontario in more ways than I can recount here; whether it was teaching how to manage my treatment, advocating for better care, or providing spaces for mentorship Hemophilia Ontario has played a pivotal role in my life. With that said, I consider it a great honour to be able to give back to the organization that gave so much to me. My hope is that I can in some way contribute to making the organization better for future generations!'

Meagan Bordi




Over the past 5 years as a CWOR council member I have seen the hard work being done by Hemophilia Ontario and its volunteers to improve the lives of people with bleeding disorders. I am extremely honoured to be able to work with this board and help our community in any way I can.


Maia Meier




Maia Meier has been involved with the Canadian Hemophilia Society for many years as the President for Hemophilia Saskatchewan, and then Secretary on the Canadian Hemophilia Society's National Board.  Affected by von Willebrand Type 2, Maia is passionate about raising awareness about women and bleeding disorders.

'As a woman growing up with a bleeding disorder, I've learned about the many challenges and issues that often need to be worked through and overcome.  Through implementing of our programs and services I want to help, support and inspire other women who are living with inherited bleeding disorders so that they can reach their full potential and lead their life to the fullest.'


Ryan Kleefman



Hemophilia has always been a very influential part of my life. Having hemophilia has its impacts on the way I live, but the hemophilia community definitely has much further reaching influences. From Pinecrest summer camp to holiday parties, Hemophilia Ontario has always been there. Moving from training to be a camp counselor to becoming camp director to taking a place on the regional council, I've always been looking for new ways to be involved and influence the community that served me well for many years. Now, taking a place on the provincial board feels right and gives me a chance to give back.

Myself and my wife Rachel (and soon a new, younger addition to our family) currently live in the beautiful town of Grimsby. In our spare time, we enjoy taking hikes along the escarpment and paddling kayaks through the various rivers and ponds. Besides the fantastic scenery, it's not far from McMaster University Medical Centre, where I work as a Genetics Technologist.

I look forward to getting to know my fellow Board Members and taking on the new challenges this position offers.


Shelley Hewett



A mother to a son with hemophilia, Shelley Hewett is keenly aware of the challenges facing youth with hemophilia today, and knows first-hand the struggles that parents face raising and assisting a young person with hemophilia.  Having worked as a caterer, decorator, and event planner over the last ten years, the Hemophilia Ontario Board of Directors is in good hands in regards to fundraising with Shelley on board.

'I am eternally grateful for the hard work that has been done by the Hemophilia Society over the past fifty plus years.  Had this work not been done, my son would not have the treatment options that are available to him today.  That being said I know that moving forward will bring about its own challenges as well.  Helping in any way I can to make the future a better place for those affected by bleeding disorders by working through these challenges is an honour and a pleasure.'