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Recent Activities


The PEI Chapter of Canadian Hemophilia Society recently had their semi-annual meeting where they officially welcomed the new executive members.
They also recognized 3 chapter members and awarded them for their years of dedicated service in volunteering on the executive board.
The PEI Chapter welcomes new members with an inherited bleeding disorder.

G
ROUP PHOTO - From left to right: Dan Doran, Secretary; JoAnn Craig, outgoing President; Glen Sanders, retiring Treasurer, 27 years dedicated volunteer; Reta Sanders, retiring Secretary, 22 years dedicated volunteer; and Shelley Mountain, incoming President of the PEI Chapter of Canadian Hemophilia Society
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UPSE Has a Heart Campaign 2012

The Union of Public Section Employees in Charlottetown, PEI donated to non-profit organizations serving the
PEI Community.
Shelley Mountain gave a 5 minute presentation to the panel board in the month of February 2012.
Thank You to UPSE who made a donation of $300 to the
PEI Chapter of the Canadian Hemophilia Society.


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UPSE Has a Heart Campaign 2011

The Union of Public Section Employees in Charlottetown, PEI donated $24,000. this year to non-profit organizations serving the PEI Community.
Shelley Mountain gave a 5 minute presentation to the panel board in the month of February 2011.
Thank You to UPSE who made a donation of $500 to the
PEI Chapter of the Canadian Hemophilia Society.



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NACCHO (North American Camping Conference of Hemophilia Organizations)
Shelley Mountain, Vice President of the PEI Chapter
and Dan Doran, Past President recently attended the NACCHO conference held in Tempe, Arizona, US.
There were many, many ideas shared and great lessons learned on operating, sharing and learning about
Hemophilia Camps.
The theme for the conference was being a Super Hero!!
I can truly say we met some great Super Hero role-models!
The PEI Chapter will certainly take this information for
future implementation of our own special family weekend or Family Camp. Stay tuned for future updates!!



Our Maritimers Picture at NACCHO!!



Our 'Super Hero' Hemophilia Treatment Center Nurses for PEI and New Brunswick (Dorine Belliveau, Louise Bedard)
Fancy Poses Girls!!!!!


Our one and only Super Hero-SuperStar
Shelley Mountain.
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The 1st Annual
'SWIM FOR A CURE' - A Bleeding Disorder Event!!
was held Saturday, November 6th, from 5pm-7pm at the
CARI Aquatics Facility (UPEI)


THANKS TO OUR MAJOR
'FRONT STROKE' SPONSOR
Bayer Healthcare


and our Back Stroke Sponsor
Novo Nordisk

This was a FREE SWIM BY DONATION.
There were educational booths by the following organizations: PEI Chapter of Canadian Hemophilia Society, CARI Aquatics Facility, Bayer Healthcare, Canadian Blood Services (What's Your Blood Type), and PEI Arthritis Society.









This was an exciting EVENT which raised $1,002. towards assisting the members of the PEI Chapter!!


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The New Brunswick Chapter held a Bleeding Disorder Camp for kids from August 24 to 29, 2010 and have invited the PEI chapter to attend.
Shelley (Vice-President of the PEI Chapter) and her husband Marc Mountain were parent volunteers. Valerie Mountain (VWD) and her friend attended the 5 day camp. A fabulous time was had by all

Valerie made the comment 'Are we going again next year, cause I really want to' meant a great deal to her parents!!!

Below are some great pictures taken at camp......












WHAT AN AWESOME TIME!!!! THANK YOU NEW BRUNSWICK CHAPTER. YOU DID A GREAT JOB!!!!

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THE
FAMILY
EXPO








was held on Sunday, June 20, 2010 at the Credit Union
Place in Summerside, PEI.

Family Place, in partnership with the Parent Support Network, hosted the Biggest Family related Expo on PEI!!

Shelley Mountain attended a booth for VWD awareness. Over 700 bandage dispensers were handed out along with lots of information regarding our CHS organization.

A newly diagnosed family with VWD was welcomed to the booth and information was provided to them. They have been in contact with Shelley Mountain, vice-president of the PEI Chapter regarding further details of the disease and personal experiences. This family now has the ability to reach for support and feel a little less anxious knowing there is a whole world out there of people with this disease.



A fantastic fun filled afternoon included: Information & Display booths, Educational activities, Princess/Pirate dress up, Mother Goose reading corner, Face painting, Cookie decorating, Crafts for all ages, Toddler world play centre, Bunny Trails petting zoo, Child-size miniature golf, Music Man, Magic shows, UFIT Fitness, Contests, DOOR PRIZES & FREEBIES!!!!






This was indeed an AWESOME EVENT!! We have reached others with VWD, provided support, information, and guidance.

THIS WAS TRULY A SUCCESS!!!


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RUN/WALK FOR IT 2010

in support of PEI Chapter on World Hemophilia Day
The 'Run/Walk For It' event was held on
Saturday, April 17
at the Green Valley Market in Milton, PEI.

JoAnn Craig, President of the PEI Chapter giving a
speech just prior to the race beginning.
'This is something very near and dear to my heart',
explained JoAnn.



Canadian Blood Services
had a booth set up to
'Make your Appointment'
to give blood.
THANK YOU!!!!









A large turn out attended this timed event with prizes
for the 1st Male and 1st Female Runners and
1st Male and 1st Female Walkers.
Congratulations Winners!!



As you can see, the excitement of youth for this challenge was awesome!








Smiles were plentiful!! :) even on a cloudy day.



A few of our Chapter members above (Amy Milligan Robinson and her husband) and
(Richard Blaquiere and his wife).





Breathless, but making it to the finish line with a good time, was what these two
had in mind!!!






And a big thank you to everyone who made this a
great success including our volunteers at each
checkpoint station!




(pictured here is Colin Craig picking up volunteers
at one
of the stations! What a trooper!!!)

HERE'S TO 2011 'RUN FOR IT' !!!!!!!!


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RED WHITE & YOU EVENT
for World Hemophilia Day across PEI!!!

On April 17th, 2010 our PEI Chapter kicked off two Red White & You events at local schools where the children in our Chapter attend.
Children of these schools learned about Hemophilia & Inherited Bleeding disorders as well as what makes us 'UNIQUE'!!!
Education materials (stickers, bookmarks, pamphlets, bandage dispensers, along with stickers from Canadian Blood Services 'Future Donor') and treats were given out to bring home.
WHAT A WONDERFUL TIME for our YOUTH to learn about The Canadian Hemophilia Society and World Hemophilia Day!!!



(pictured here is Valerie Mountain, daughter of Shelley Mountain, member of PEI Chapter and Valerie's teacher Mme. Chrissy Knight. Her class made posters with 'Je suis Unique'. Each child drew themselves and decorated their pictures. These posters were then hung in the lobby for the whole school to see how each of us are UNIQUE!!).
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Presentation to PEI Senior Safety Program Volunteer Training Day - 'Vial of Life'
Wednesday, May 19th, 11:00am
Shelley Mountain did a presentation to the semi-annual meeting of board and volunteers of the PEI Senior Safety Program. RCMP was also in attendance.
'Vial of Life' was introduced to PEI in mid-1990's and growing rapidly. This free program which was designed for our aging population has also assisted families with serious medical conditions as well as mentally and/or physically challenged people of all ages. The 'Vial' is a plastic bottle containing a sheet with all the patient's medical information & emergency contacts. It is then placed in the person's fridge with a sticker placed on fridge door. Firefighters (PEI Fire Marshal's office has endorsed this product and firefighters have been taught the 'Vial of Life' ) know that this person has all pertinent information. Information in 'Vial' is reviewed every 6 months by volunteers; it is up to end-used to ensure he/she keeps information up to date. Program sponsored by Credit Unions of PEI which is run primarily on volunteers and is free of charge to all Islanders.
Shelley gave an emotional speech about VWD and Hemophilia along with her life story. She concluded with a message about how special volunteers are even to help just one person. We are all working towards the common good!
Keep Smiling!!

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May 2010,
Mother & Daughter Expo



PEI Chapter held a booth display at the Mother & Daughter Expo put together by the
Arthritis Society of PEI & 'Joints In Motion' Initiative
at the Summerside Waterfront Mall. Carnations and balloons were handed out to everyone.

This was an excellent way of reaching out to women and their daughters. There were many many stares and curious questions! This was indeed a great success!!

Shelley Mountain attended the booth with educational materials and handouts along with pictures of some of our families in our PEI Chapter!! Over 200 Bandage dispensers were dispersed to the crowd.

A few stopped to mention they knew someone who had a bleeding disorder and a couple asked for information to pass along to someone who needed resources!!
'If only to help one person, would be worth it' believes Shelley Mountain and her daughter Valerie pictured above.


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'UPSE HAS A HEART' Campaign

The Prince Edward Island Union of
Public Sector Employees
distributed a
significant amount of money to
various local community and non-profit groups as part of its “UPSE Has a Heart' campaign.
Shelley Mountain gave a 5 minute presentation to the panel board in the month of February 2010.
We were awarded $300.00.
A big Thank You to UPSE for your generous donation on behalf of the PEI Chapter.
This will aid in supporting our members in our Chapter.


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'I WAS SPEECHLESS... IT SEEMS LIKE A DREAM',
girl says of meeting Hannah Montana
Story of Olivia Craig, news story in
The Guardian newspaper

Please follow the link below to read the amazing story of
The Children's Wish Foundation recipient in our
PEI Chapter!!!
This is an incredible story....
http://www.theguardian.pe.ca/index.cfm?sid=332951&sc=98