The Canadian Hemophilia Society – Novo Nordisk Canada Psychosocial Research Program was created to engage professionals/graduate students from the allied health disciplines (ie. Nursing, Physiotherapy & Social Work) in research activities addressed to understanding the psychosocial impact of hemophilia and other inherited bleeding disorders and to improve the quality of life of persons and families whose lives are affected by these disorders.
The Research Grants are made possible thanks to generous financial support from Novo Nordisk Canada. Novo Nordisk develops, manufactures and markets products that make a significant difference to patients, the medical profession and society. Novo Nordisk has a leading position within areas such as coagulation disorders, growth disorders and hormone replacement therapy. In addition, Novo Nordisk is also the world leader in diabetes care. The CHS is proud to be in a partnership with Novo Nordisk in order to offer this important Research Program.
The primary intent of this program is to offer one or two $20,000 research grants, to a maximum of $40,000 for one year.
Depending upon the number and quality of applications, funding for different amounts is possible, as is the offering of more than one research grant, within however, the allotted total budget stated above.
The major portion of each grant would be to cover the research time for the successful candidate(s), including the time for research assistants. A small amount can be devoted to project expenses.
To be eligible the applicant must be a Social Worker, Nurse, or Physiotherapist with professional experience in a hemophilia treatment centre or other comparable settings in which care has been provided to people with hemophilia and other inherited bleeding disorders or persons interested in the field of inherited bleeding disorders. Professionals who have appointments in universities and who can dedicate time to research are encouraged to apply. Students must be in a PhD program in one of the allied health disciplines. Professional experience in a hemophilia treatment centre is desirable but not required.
The proposed research must have relevance to current practice in bleeding disorders care and may incorporate a broad spectrum of quantitative and qualitative research methods addressing professional practice with individuals, families, groups and communities, organizational issues, public health, and education.
It is expected that the focus will: (1) promote the integration of psychosocial care with biomedical components of comprehensive care; 2) promote delivery of quality services to patients and families; 3) contributed to the literature on the psychosocial impact of bleeding disorders; (4) demonstrate nursing, physiotherapy or social work outcomes of the research or clinical project.
Interest areas and methodologies might include: impacts of social work/clinical practice on evolving chronic illness and/or disability care modalities; psychosocial and mental health issues for those affected with bleeding disorders/HIV/HCV; education and vocational issues; increased understanding of issues raised in the HERO (Hemophilia Experiences Results Opportunities) research; media projects and/or learning tools for patient/professional development and evaluation; participatory action, applied and operational research initiatives; interpersonal, gender, sexuality, cultural diversity, workplace, stigma and poverty issues.
Collaboration with multidisciplinary care providers and/or between two or more hemophilia centres is accepted and encouraged. Collaboration efforts may include, for example, nursing, social work, physical therapy and genetics. It thus may be possible for a hemophilia centre team to jointly submit a cooperative research project. Additionally, inter-regional applications will be considered.
Applications and Deadline:
A letter of intent should be submitted to the Canadian Hemophilia Society by November 15, 2016. This should be a letter of a maximum of two pages identifying the applying researcher and organization and providing a summary description of the intended area of research.
Multidisciplinary applications are welcomed. Please note that if a multidisciplinary project is sought, you are encouraged to indicate in the letter of intent and in the application how the project would proceed if only one fellowship were to be awarded.
The CHS Peer Review Committee will invite a limited number of candidates to submit a more detailed proposal by January 9, 2017 in order to make a final selection. Grants will be offered for a one-year period to begin in April 2017.