The Canadian Hemophilia Society - Shire Fellowship was created to engage hemophilia program professionals/graduate students from the disciplines of nursing, physiotherapy, social work and other related allied health disciplines in research focused on improving services and quality of life for people and families whose lives are affected by inherited bleeding disorders.
The fellowship is made possible thanks to generous financial support from Shire.
Shire is the leading global biotechnology company focused on serving people with rare diseases and other highly specialized conditions. Shire has best-in-class products available in more than 100 countries across core therapeutic areas including Hematology, Immunology, Neuroscience, Lysosomal Storage Disorders, Gastrointestinal / Internal Medicine / Endocrine and Hereditary Angioedema; a growing franchise in Oncology; and an emerging, innovative pipeline in Ophthalmics. Its employees work every day with a shared mission: to develop and deliver breakthrough therapies for the hundreds of millions of people in the world affected by rare diseases and other high-need conditions, and who lack effective therapies to live their lives to the fullest.
The CHS is proud to be in a partnership with Shire in order to offer this important fellowship program.
This program will offer one or more fellowships not exceeding total funding of $20,000. Please see the details provided below outlining the eligibility by discipline and ability to submit a multidisciplinary and/or multi centre application.
Depending upon the number and quality of applications, funding for different amounts may be possible, as is the offering of more than one fellowship, within the allotted total budget stated above.
The major portion of the grant would be to cover the research time for the successful candidate(s). A small amount can be devoted to project expenses.
Applicants may send their proposals for any one of the following types of fellowships or a combination of these:
The objectives of the Nursing Fellowship are to improve the delivery of care and expand the knowledge of nursing science surrounding bleeding disorders. The purpose of the Nursing Fellowship is to provide support for a registered nurse currently employed or interested in the field of inherited bleeding disorders to conduct nursing research or clinical projects. Only registered nurses from an accredited nursing school, enrolled in a graduate nursing program or practicing hemophilia nursing care may apply. This could include in-patient nurses who care for people with hemophilia as well as HTC nurses or infectious disease nurses.
Topics of interest include, but are not limited to, the unique considerations in the management and care of patients with inhibitors, the development of clinical pathways, measurable outcomes in inherited bleeding disorder care, service utilization, epidemiology and patient and community education tools. Other topics include rehabilitation, therapeutic modalities, psychosocial issues, women's health, liver disease in clients with inherited bleeding disorders infected with HIV/AIDS or/and HCV.
The objectives of the Physical Therapy Fellowship are to improve the delivery of physical therapy care and expand the knowledge base specific to the management of the musculo-skeletal effects of hemophilia. The Fellowship will provide support for a physical therapist currently employed or interested in the field of inherited bleeding disorders to conduct physical therapy research or clinical projects related to the care of the patient with hemophilia and other inherited bleeding disorders.
Topics of interest may include, but are not limited, to the following: the unique considerations in the management and care of patients with inhibitors, development of clinical pathways, physical therapy protocols, physical therapy utilization, measurable outcome studies, rehabilitation programs, use of modalities and other interventions commonly used by physical therapists in the treatment of the patient with hemophilia and other inherited bleeding disorders.
Social Work Fellowship
The objectives of the Social Work Fellowship are to improve the delivery of care and expand the knowledge of psychosocial practices. The purpose of the Social Work Fellowship is to provide support for a social worker currently employed or interested in the field of inherited bleeding disorders to conduct research or clinical projects related to the care of the patient with hemophilia and other inherited bleeding disorders. To be eligible the applicant must be a MSW from an accredited school of social work or be a student in a PhD/DSW program. Professional experience in a hemophilia treatment centre is desirable but not required.
The proposed project must have relevance to current practice in inherited bleeding disorder care and may incorporate casework, group work, organizational and public health, education and research perspectives. It is expected that the focus will be to: (1) promote the integration of psychosocial care with biomedical components of comprehensive care; (2) promote the delivery of quality services to patients and families; (3) contribute to the literature on the psychosocial aspects of inherited bleeding disorders; (4) demonstrate social work outcomes of the research or clinical project.
Topics of interest may include, but are not limited, to the following: the unique considerations in the management and care of patients with inhibitors; impact of social work practice on coping with chronic illness and/or disability; impact of case management on patient care; improved clinical practice; research skills and goals for psychosocial providers; mental health issues of those affected with inherited bleeding disorders or bleeding disorders/HIV/HCV; development and use of media projects and/or learning tools for professional or patient evaluation. A focus on cultural diversity is welcomed.
Collaboration with multidisciplinary care providers and/or between two (2) or more hemophilia centres is accepted and encouraged. Collaboration efforts may include, for example, social work, physical therapy and genetics. Inter-regional applications will also be considered. Note that, as stated above, although there may be more than one Fellowship awarded, total funding will not exceed $20,000. Please note that if a multidisciplinary project is sought, you are encouraged to indicate in the letter of intent and in the application how the project would proceed if only one Fellowship were to be awarded.
Applications and Deadline:
A letter of intent should be submitted to the Canadian Hemophilia Society by November 15, 2016. The CHS Peer Review Committee will invite a limited number of candidates to submit a more detailed proposal by January 9, 2017 in order to make a final selection. The letter of intent should have a maximum of two pages identifying the applying researcher and organization, and providing a summary description of the intended area of research.
Fellowships will be offered for a one-year period to begin in April 2017. It should be noted that allocation of the grant is conditional to the CHS having received from Shire funding confirmation in 2017 for the Fellowship Program.