Our Partners

Opportunities to participate in marketing research studies

From time to time the CHS collaborates with market research companies. We believe that market studies can provide valuable information to companies on how to improve their products and services.

The CHS is helping with the publicizing of this market research opportunity to chapters, but is not providing any information about members.

Keep your eyes open for postings about future market research studies.


January 2018

Survey on benefits and risks of treatment for hemophilia A with inhibitors to factor VIII

NEW DEADLINE TO PARTICIPATE! The survey will close March 31, 2018.

The Community and Patient Preference Research (CaPPRe) group is conducting an online survey of patients about the benefits and risks of treatment for hemophilia A with inhibitors to factor VIII on behalf of a research-based pharmaceutical company. CaPPRe works closely with clinicians, patient organizations, industry and government to conduct research that incorporates patient values and preferences into health care and treatment funding decisions.

CaPPRe would like to invite patients, as well as caregivers of a child with hemophilia A with inhibitors to take part in the survey.

Please click on the following link if you would like to participate: http://survey.confirmit.com.au/wix/5/p2093005.aspx.

The survey asks participants to choose between different treatments for hemophilia A. Patients are then asked to consider scenarios for different treatments and to choose which option(s) they prefer. The answers to these questions will signal to CaPPRe the factors that are most important to patients when choosing between treatments. This information will help build an understanding of what treatments are preferred and valued by patients with hemophilia A and may help inform new treatment options in the future.

While clinical trials provide evidence for the safety and efficacy of new treatments, real-life experience (e.g., the burden of disease and impact on quality of life) helps inform how treatments are assessed by regulatory bodies and reimbursement agencies.

If you have any questions regarding this research, please do not hesitate to contact Dr. Kim Hamrosi at CaPPRe: kim.hamrosi@cappre.com.au.