Our Partners











Opportunities to participate in marketing research studies


From time to time the CHS collaborates with market research companies. We believe that market studies can provide valuable information to companies on how to improve their products and services.

The CHS is helping with the publicizing of this market research opportunity to chapters, but is not providing any information about members.

Keep your eyes open for postings about future market research studies.


_________________________________________________


March-April 2012

Survey about access and barriers to care for orphan drugs & rare disease technologies

The CHS has been invited to take part in a very important survey on access to services for patients with rare diseases. The purpose of this international survey is to better understand how rare disease patients are currently accessing health care services and specifically new therapies, their role in the health care system processes for making therapies available, and the obstacles encountered in trying to access care.

All of the answers provided in this survey are confidential and coded to ensure they are anonymous and cannot be linked back to any individual respondent. Your answers will not be shared with anyone else and will have no impact on the health care you receive.

If you wish to participate, please click here.

Deadline to complete the survey is April 13, 2012.