Opportunities to participate in research

This article is intended solely to inform readers of this study and the patient recruitment currently underway. Its inclusion is not an endorsement of a particular product, company or study.


Participants wanted for survey-based research study.
Study Description
The department of Pathology at Dalhousie University, in conjunction with the IWK Health Centre and Capital District Health Authority in Halifax, NS, is currently seeking participants for a research study. We are interested in learning about the bleeding symptoms experienced by carriers of hemophilia and their experiences within the Canadian healthcare system. The results of this study will help to identify the range of symptoms experienced by female carriers of hemophilia, educate healthcare providers about these symptoms, and improve medical care for these individuals. Participants in this study will be sent a survey and asked to answer questions about their or their child’s carrier status, medical history, and medical experiences. Participants will have the option of answering this survey in French or in English.

Who can participate:
—    Women who are carriers of hemophilia A or B;
—    The parents of girls who are carriers of hemophilia A or B;
—    Men with hemophilia for comparison purposes;
—    and women who are not hemophilia carriers for comparison purposes.

If you would like to take part in this survey, please contact the researchers by sending an e-mail to HABcarriers@gmail.com, or by calling Dr. Wenda Greer at 902-473-6691 to request a copy of the survey be sent to you.