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Opportunities to participate in research


This section is intended solely to inform visitors of various research studies and patient recruitment currently underway. Their inclusion is not an endorsement of a particular product, company or study.

CLINICAL TRIALS of medications…phases…the pros and cons…the rights of “subjects”…are trials necessary?

You will find below links to web sites which provide answers to frequently asked questions about clinical research.

It Starts With Me

CanadaTrials.com 's Clinical Research FAQ page 

Clinical Trials: What you need to know , published by the CIHR Canadian HIV Trials Network in partnership with the Canadian AIDS Society.


ClinicalTrials.gov is a registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals.


Searching for clinical trials just got easier. TrialReach is a revolutionary search engine for clinical trials, covering all medical conditions from all over the world. TrialReach works closely with patients, doctors and pharmaceutical companies to make clinical research information more clear and accessible.


Positive Plus One



The Canadian Hemophilia Society is supporting researchers across the country on Positive Plus One: A national, mixed-methods study of relationships where one partner has HIV, and the other does not. Positive Plus One is currently recruiting participants, and wants to hear the voices of both HIV-positive and HIV-negative partners. Participants can share the ups and downs of living with HIV in their relationship. Their experiences may also help other couples, and may lead to better health and support programs for all.

If you would like to participate in the study, please go to www.PositivePlusOne.ca or call 1-888-740-1166.

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Invitation to families of children with bleeding disorders to participate in an interview-based research study
Description
The College of Nursing at the University of Manitoba in Winnipeg is currently seeking families to participate in a research study. The purpose of the study is to learn about the experiences and needs of families of children living with bleeding disorders, as they learn to live with and manage their disorder from diagnosis through other key care transitions. What will be learned from all participants will result in knowledge that may help health care professionals to develop meaningful policies, services, and programs specific to involving children with bleeding disorders.

Who can participate
Children and youth ages 5-25 years old living with a bleeding disorder (including: hemophilia, von Willebrand disease, and other rare bleeding disorders), and their families (parents and siblings).

Process
Each parent, child, and sibling will be asked to participate in one interview via telephone or Skype about their experiences living with a bleeding disorder or their experiences of being a parent/ sibling of a child with a bleeding disorder. If they choose, they can participate in a second interview after they have taken photos of people, places and things related to their experiences with a bleeding disorder. Interviews are scheduled at each family’s convenience including evenings and weekends. Each family will receive one $50 gift card and each participant will receive a basic digital camera in appreciation of their time. All data will be kept confidential and will be destroyed after five years. At this point in time, interviews will only be conducted in English.

Contact
If you and your family are interested in this study or need additional information, please contact Holly Alston by e-mail at Holly.Alston@umanitoba.ca or by phone at 204-272-1686 by April 1, 2016. You may also contact Dr. Roberta Woodgate by e-mail at Roberta.Woodgate@umanitoba.ca or by phone at 204-474-8338.

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Do you have mild hemophilia?
Volunteers are still needed to review and evaluate a self-assessment tool designed specifically for people with mild hemophilia.

If you are aged 18-35 and would be willing to participate in a short telephone interview, please contact  JoAnn Nilson, PT in Saskatoon, via e-mail at joann.nilson@saskatoonhealthregion.ca or by phone at 306-655-6628 or 306-655-2431.

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