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Research Project Funded in 2013

An institutional pilot study to investigate exercise patterns in boys with hemophilia

Ms. Vanessa Bouskill, MN, RN(EC) Nurse Practitioner-Paediatrics &
Ms. Pamela Hilliard, BSc (PT), Physiotherapist

Comprehensive Bleeding Disorders Clinic
Division of Haematology, Department of Paediatrics
The Hospital for Sick Children (Toronro)
One year funding. Start: September 2, 2013; To end August 31, 2014.

Hemophilia is a genetic bleeding disorder defined by a deficiency/lack of coagulation factor: Hemophilia A factor VIII (FVIII) deficiency and hemophilia B factor IX (FIX) deficiency.  Hemophilia is further divided into level of severity based on the level of factor within the blood (severe <1%, moderate 1-5% and mild 5-30%).  Those with severe hemophilia generally have a higher likelihood  of bleeding.  Concern regarding incurring joint/muscle bleeds may lead to decreased participation in moderate to vigorous physical activity. Many studies have proven that regular exercise/activity participation has cardiovascular, musculoskeletal, and mental health benefits.  This pilot study involving boys enrolled in the Hospital for Sick Children Hemophilia Comprehensive Care Clinic will explore differences in the amount of time spent in moderate to vigorous physical activity (MVPA) relating to disease severity using an accelerometer and two self-report questionnaires (Paediatric Hemophilia Activities List -PedHAL and 3 day physical activity recall- 3DPAR).  The accelerometry data will also be compared to a healthy (unaffected) Canadian cohort.  As well, the relationship between level of physical activity and age, weight, body mass index and prophylactic regimen will be explored.