Our Partners

Research Project Funded in 2015

Knowledge translation of joint assessment in parents of children with hemophilia – The impact of a group intervention/education

Celina Woo, RN, MN, NP(P) and
Lawren De Marchi, B.Sc. (Kin), MPT
BC Children’s Hospital – Vancouver
One year funding

Bleeding into joints, hemarthroses, can be problematic in patients with hemophilia. It is more likely to occur with lower levels of factor VIII or IX, but also with injury for those with mild hemophilia. Poorly treated hemarthroses can lead to long-term joint damage, pain and disability. Joint assessment includes: looking for swelling, pain, changes in range of motion with the initial bleed and during resolution. Inadequate joint assessment may lead to increased factor usage and longer time to heal.

Long-term impacts of poorly treated joint bleeds may not be fully understood. We teach families about joint assessment at review visits or when their child is seen for bleeds. These are suboptimal teaching times as caregivers may be distracted, or the child is in pain; teaching during these visits may be brief and not address the family’s needs.

This pilot study, involving parents of boys aged 1-6 years, parents and boys 7-13, and adolescents 14-18 years at BC Children's Hospital, will examine the impact of group education sessions on their knowledge and ability to perform a joint assessment. Participants will be monitored during, and take an expert-reviewed questionnaire, created by study investigators, pre-, immediately post, and three months post sessions.