Our Partners

Research Projects Funded in 2014

Implementation, utilization and effectiveness of an electronic application developed specifically for young men with mild hemophilia

JoAnn Nilson, PT
University of Saskatchewan
One year funding. Start: May 1, 2014; to end April 30, 2015.

Young adult Canadian men with mild hemophilia tend to deny their condition and often delay seeking medical attention because they cannot distinguish the difference between ‘mild’ injuries and significant bleeds. Delaying treatment results in higher use of clotting factor, longer recovery periods, and increases demands on the health care system. With the input of young men age 18-35 with mild hemophilia and health care professionals, an electronic application for smart phones has been developed.  “HIRT?” the App helps assess a musculoskeletal injury, encourages use of first aid and suggests contact with the Hemophilia Treatment Center if symptoms worsen. This study will spread the use of this App throughout Canada and test its effectiveness over a period of 12 months.  15-20 of the young men who have used the App and 50-60 health care practitioners across the country will be asked about the usefulness of this App.  This research will provide evidence about a new treatment tool for those with mild hemophilia. It may contribute to earlier treatment decisions by these young men and better communication with the health workers.

After 12 months of individualized treatment plans, what is the long-term impact on physical activity and quality of life in a single treatment center?

Sandra Squire, BScPT
St-Paul’s Hospital (Vancouver)
One year funding. Start: April 30, 2014; to end March 31, 2015.   

The study will look at the long term impact for patients on an individualized prophylaxis plan. It will measure their level of activity, their quality of life and the number of bleeds. Together the Hemophilia health care team and the patient will set up an individualized treatment plan. The discussion will be based on a motivational interviewing philosophy; this means that the aim is to really understand what treatment plan is important to the patient, types of exercise they are doing and want to do, and their school and work schedules. To measure the patient changes on the individual program we will look at three areas: 1. Measurement of physical activity 2. A quality of life questionnaire  3. Information from the patient self reported bleed records.  An accelerometer will measure physical activity; it is a computerized armband worn for a week that collects information about all the movement that the client is doing e.g. it will know how often, fast and far a person is walking and time spent sleeping. All three measurement tools will be done at the start of to obtain a client baseline, and at the end of one year. Information collected will indicate how the treatment has influenced the amount of activity, quality of life and the number of bleeds.