Navigating the ER

It’s 10 o’clock at night. Your child with hemophilia fell earlier in the day and now he has awoken in tears. His ankle is swollen. You have no factor at home to infuse. You rush to the nearest hospital emergency room and sit in the waiting room and wait … and wait … and wait. When your child is finally examined, the ER doctor says, 'I’m not sure your son’s ankle is bleeding. I’ll have to run some tests.'

Unfortunately, scenes like these have happened all too often. Many people with bleeding disorders have experienced first hand the frustration and anxiety of trying to get timely and appropriate care for themselves or their children at the ER.

This booklet contains practical suggestions on how to prepare for the ER and make things go more smoothly for you or your child. ER visits may be necessary from time to time, despite your best efforts to prevent injury. However, by being prepared and well informed about your bleeding disorder before ever stepping into the ER, you can pave the way to successfully accessing emergency care.


Brochure

Checklist
Workshop guidelines