Step by Step Program

Welcome to the Step-by-Step Program

Step by Step is the Canadian Hemophilia Society (CHS) program for parents of children with bleeding disorders. The program was developed with input from Hemophilia Treatment Centre (HTC) health care providers and parents of young children with bleeding disorders from across the country. The CHS would like to acknowledge Bayer Inc. for its generous support of the Step by Step Program.

Raising a child with a bleeding disorder can be challenging and even overwhelming at times. It is important to realize that you are not alone. The Step by Step Program is designed to provide parents with information and support during the different stages or “steps” of their child’s development.

Initially, parents are welcomed into the bleeding disorders community by receiving Info Kits, information packages that contain educational material, information about the CHS and useful items offered to the family by the HTC nurse coordinator at the time of diagnosis. Follow-up packages will be presented after one year and before the child starts school.

Sometimes you will need the understanding that only someone who shares the same situation can provide. Parent to Parent is an online program that allows you to connect with another parent who perhaps has already gone through a similar experience and with whom you can share your concerns and questions.

The Forum is an online bulletin board where parents can read about specific topics related to raising a child with a bleeding disorder and share experiences, tips and success stories. Topics change each month so please visit the Forum regularly to see what’s new.

Just the Guys is a place where a dad can learn more about how to take an active role in the care of his child with a bleeding disorder.

Recent and upcoming activities of interest to parents are featured in Events. And you are encouraged to check out the listing of educational material for parents that is included in Resources.

By maintaining a close relationship with the HTC team, learning about all aspects of your child’s bleeding disorder, getting involved with your local CHS chapter, and sharing experiences with other parents, we know our families will continue to cope with their challenges and help their children to live healthy and fulfilled lives... one step at a time.