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Rendez-vous 2017




Webcasts of the Rendez-vous 2017 presentations from the Medical and Scientific Symposium (May 26, 2017) are available on YouTube. Click on the appropriate link to view each session.

SESSION 1 - A BRAVE NEW WORLD IN COAGULATION THERAPIES

Chair: Jayson Stoffman, AHCDC

Can we extend far enough? Extended half-life FVIII and IX coagulation factors in Canada
    Dr. Shannon Jackson
   
Inhibitor management: what's new?
    Dr. Manuel Carcao

Do we really need FVIII and FIX? Alternative strategies to treat hemophilia
    Dr. David Lillicrap

Gene therapy in hemophilia: current status and future prospects
    Dr. Jerome Teitel




SESSION 2 - THE CANADIAN BLEEDING DISORDERS REGISTRY

Chair: Vanessa Bouskill, CANHC

CBDR: 15 of 23 centres now “live”
    Arun Keepanasseril


CBDR in the real world: health care providers and patients from CHU Sainte-Justine in Montreal and the Royal University Hospital in Saskatoon
   
    Dr. Georges-Étienne Rivard

    Nancy Hodgson, RN

    Mathieu Jackson





SESSION 3 - WOMEN AND BLEEDING DISORDERS

Chair: Pam Wilton, CHS

Excessive bleeding in women: spotlight on hemophilia carriers
    Dr. Michelle Sholzberg

What can we learn by studying desmopressin responses in hemophilia carriers?
    Dr. Paula James




SESSION 4 - ISSUES THROUGH THE LIFESPAN

Chairs: Lawren De Marchi, CPHC; Rick Waines, CHS

Managing hemophilia online: the development, testing and implementation of a transition program for teens
    Dr. Vicky Breakey

A new approach to choosing sports and activities
    Julia Brooks, PT
    Jeremy Hall


Point-of-care ultrasound in hemophilia: building a strong foundation for clinical implementation
    Wendy Lawson, professor

“Moving Ahead with Hemophilia”: feedback from Canadians ageing with hemophilia

    Yola Zdanowicz, Ensemble Strategies