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Educational resources

The CHS educational resources are available in English and French in pdf and hard copy.

To order educational resources, please see CHS Catalogue of Educational material.

GUIDELINES ON BLEEDING DISORDERS IN WOMEN

Guidelines Published by the Society of Obstetricians and Gynaecologists of Canada (SOGC)
SOGC Clinical Practice Guidelines on the Gynaecological and Obstetric Management of Women with Inherited Bleeding Disorders were published in the July, 2005 issue of the Journal of Obstetrics and Gynaecology Canada. Publication of these guidelines was one of the key recommendations arising from the 2003 1st Canadian State of the Art Conference on von Willebrand Disease organized by the Canadian Hemophilia Society. The CHS would like to acknowledge the authors: Drs. Christine Demers, Michèle David, Christine Derzko and Joanne Douglas whose expertise and efforts made this achievement possible. The guidelines are available in PDF format. This material is under copyright and is accessible for educational purposes only. It cannot be copied or reproduced without approval from The Society of Obstetricians and Gynaecologists of Canada. PDF


Management of Women with Bleeding Disorders
(AHCDC Sub-committee on women with bleeding disorders)
The purpose of this work is to provide for women with bleeding disorders suggestions on
  1.    the optimal management through multidisciplinary clinics,
  2.    the laboratory investigation of bleeding disorders,
  3.    the medical treatment of menorrhagia and
  4.    the management of pregnancy.
PDF



VON WILLEBRAND DISEASE

All About von Willebrand Disease -
Third Edition

A comprehensive guide for people with von Willebrand disease and their families. Developed and published by the Canadian Hemophilia Society and revised in 2011.



Von Willebrand Disease - The Most Common Bleeding Disorder: Your Questions Answered
A general information booklet about the symptoms, diagnosis, and treatment of VWD. Developed and published by the Canadian Hemophilia Society. PDF


Emergency care for patients with von Willebrand disease
An instructional manual with guidelines on the treatment and management of von Willebrand disease emergencies including recommended dosage. PDF


Cyklokapron - A Guide for Patients and their Caregivers
A revised version of this simple brochure providing basic information on the uses and administration of this drug. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF


Desmopressin - A Guide for Patients and their Caregivers
A revised version of this simple brochure providing basic information on the uses and administration of DDAVP, Octostim, Octostim Spray and Stimate. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF


VWD: What school personnel should know
An information booklet about von Willebrand Disease for teachers and other school personnel. Developed by the Atlantic Hemophilia Nursing Group of the Canadian Association of Nurses in Hemophilia Care (CANHC).



PLATELET FUNCTION DISORDERS

Disorders of Platelet Function
An Information Booklet for Patients,Families and Health Care Providers by Sara J. Israels, M.D. and Margaret L. Rand, Ph.D. PDF


Bernard Soulier Syndrome – An Inherited Bleeding Disorder
This document is a general information booklet about the Bernard Soulier Syndrome for patients, families and healthcare providers. This booklet was developed by the Canadian Association of Nurses in Hemophilia Care (CANHC) and published by the Canadian Hemophilia Society. PDF


Glanzmann Thrombasthenia - An Inherited Bleeding Disorder
A general information booklet about Glanzmann Thrombasthenia for patients, families and healthcare providers. Devloped by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF


Cyklokapron - A Guide for Patients and their Caregivers
A revised version of this simple brochure providing basic information on the uses and administration of this drug. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF


Desmopressin - A Guide for Patients and their Caregivers
A revised version of this simple brochure providing basic information on the uses and administration of DDAVP, Octostim, Octostim Spray and Stimate. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF



CARRIERS OF HEMOPHILIA A OR B

All About Carriers
A comprehensive guide for carriers of hemophilia A or B. Developed and published by the Canadian Hemophilia Society. PDF


All About Hemophilia: A Guide for Families – Chapter 14: Symptomatic Carriers of Hemophilia PDF


Desmopressin - A Guide for Patients and their Caregivers
A revised version of this simple brochure providing basic information on the uses and administration of DDAVP, Octostim, Octostim Spray and Stimate. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF


Me and my genes
An interactive animated video that provides potential pre-teen and teenage carriers with relevant and age appropriate information about what it means to be a carrier of hemophilia A or B. It includes facts about hemophilia, inheritance of the hemophilia gene, carrier testing and the management of bleeding symptoms. The resource also includes interactive buttons for viewers to test their knowledge and access tips, myths and fun facts of interest to young carriers. Produced in 2010. Click here to watch it.



RARE FACTOR DEFICIENCIES

Fibrinogen or Factor I Deficiency – An Inherited Bleeding Disorder
Factor I (or fibrinogen) deficiency is a very rare inherited disorder with complications that vary with the severity of the disorder. It is not well known, even among health professionals. People affected by this disorder and those close to them have very little written information about it. This booklet therefore seeks to provide information for people trying to cope with this health problem. It explains the causes of the disorder and currently available treatments. PDF


Factor II Deficiency - An Inherited Bleeding Disorder
Factor II (FII) deficiency (also called hypoprothrombinemia or prothrombin deficiency) is a rare coagulation disorder. People affected by this deficiency and those close to them have very little written information about it. This booklet explains the causes of FII deficiency, its symptoms and available treatments.We hope that this information will help answer your questions. PDF


Factor V Deficiency - An Inherited Bleeding Disorder

Factor V deficiency, also called parahemophilia or Owren’s disease, is a very rare coagulation disorder. About one person in a million may be affected by this deficiency. Only 150 cases have been identified worldwide to date. PDF


Factor VII Deficiency - An Inherited Bleeding Disorder
A general information booklet about Factor VII Deficiency for patients, families and healthcare providers. Devloped by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF


Factor X Deficiency - An Inherited Bleeding Disorder
Factor X (pronounced 10) deficiency is a very rare blood coagulation disorder with complications that vary with the severity of the disorder. This deficiency is not well known, even among health professionals. People affected by this deficiency and those close to them have very little written information about it. This booklet therefore seeks to provide information for people trying to cope with this health problem. It explains the causes of the deficiency, symptoms, possible complications, and available treatments. PDF


Factor XI Deficiency - An Inherited Bleeding Disorder
This document is a general information booklet about Factor XI Deficiency for patients, families and healthcare providers. Developed by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF


Factor XII Deficiency - An Inherited Bleeding Disorder
Severe Factor XII deficiency is a very rare condition and is not well known, even among health professionals. The purpose of this booklet is to describe the deficiency with the hope that it will permit those affected to better understand the issues. PDF


Factor XIII Deficiency - An Inherited Bleeding Disorder
A general information booklet about Factor XIII Deficiency for patients, families and healthcare providers. Devloped by the Canadian Association of Nurses in Hemophilia Care (CANHC). Published by the Canadian Hemophilia Society. PDF