Hemlibra available to Quebec patients with hemophilia A and inhibitors

May 9, 2019 – Montreal – Héma-Québec informed the Canadian Hemophilia
Society-Quebec Chapter (CHSQ) today that Hemlibra® will be available for the
treatment of patients with hemophilia A and inhibitors in Quebec in the coming
days.

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Provinces stall on access to life-changing hemophilia therapy

Montreal, May 6, 2019 – The Canadian Hemophilia Society (CHS) calls on the Provinces and Territories to stop stalling and immediately make Hemlibra (emicizumab) available to all Canadians with hemophilia A and an inhibitor to factor VIII. The case of young Callum Guthrie from Nova Scotia illustrates the urgency.

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Access to Eloctate

On February 24, the CHS Board of Directors formally objected to the recent CBS decision to restrict access to Eloctate for children under 12 and called on the CBS to reverse its decision.

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Access to Hemlibra

On February 18, the CHS responded to the CBS medical/scientific review and the CADTH economic analysis of Hemlibra (emicizumab) for patients with hemophilia A with and without inhibitors.

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Research – Recruiting

Are there inequities in access to care amongst certain groups of patients with bleeding disorders?

St. Michael’s Hospital is conducting a study on access to care, in collaboration with the Canadian Hemophilia Society. People 18 years and older with a bleeding disorder are being asked to consider participating.

 

Latest development re the Pre-1986/Post-1990 Hepatitis C Settlement Agreement

On October 16-17, 2019, an application will be made by Class Counsel to the Justices overseeing the pre-1986/post-1990 Hepatitis C Class Action. At the Application Class Counsel will be seeking orders for:

  1. A declaration that future payments out of the Past Economic Loss and Dependents Fund shall be in a manner to be determined by the courts at this hearing.
  1. Such further and other relief as the Honourable Courts may deem just.

More information for those wishing to make submissions and with respect to the locations for the hearing and the start times will be provided shortly at  www.pre86post90settlement.ca.

Recombinant factor concentrate charts

Please check out our updated charts listing the recombinant factor concentrates and their description.

Click here for the rFVIII chart

Click here for the rFIX chart

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chs@hemophilia.ca

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