The Canadian Hemophilia Society has national committees composed of key volunteers who develop policies and programs to meet the needs of people with bleeding disorders in Canada.
These committees are:
Responsible for staying abreast of the latest research and scientific developments in blood, blood products and their alternatives, emerging pathogens and transfusion safety measures.
The purpose of the committee is to promote optimal standards- and evidence‐based comprehensive care for all people with inherited bleeding disorders throughout their lifespans.
The National Chapter Relations Committee is responsible for guiding chapters in the following two main areas:
The committee will develop tools to help chapters recruit, train, supervise and recognize their volunteers. As well, the goal will be to improve governance practices at all levels of the organization.
The committee will develop strategies to increase membership and develop a case for support to help chapters to engage members at the local level. The goal will be not only to understand the importance of the CHS, but also to motivate individuals to fundraise for the CHS and its chapters under an overarching campaign or initiative.
The National Youth Committee consists of very excited and energetic individuals who represent almost all regions of Canada who are working together to support, promote and address youth involvement within the organization. The role of the committee is to develop and implement youth programs which will not only respond to the needs of Canadian youth with a bleeding disorder but also will contribute to their involvement within the organization.
The purpose of the National Program Committee is to ensure the effective planning and delivery of national activities to meet the goals and desired outcomes of the 2016-2020 strategic plan in the areas of:
– care and treatment (with the exception of the safety and supply of therapeutic products which is the mandate of the Blood Safety and Supply Committee)
– education and support.