Both hemophilia A and B are very rare disorders. Hemophilia A affects fewer than 1 in 10,000 people, or about 2,500 Canadians. Hemophilia B is even less common, affecting approximately 1 in 50,000 people, or about 600 Canadians.
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Comprehensive care for hemophilia
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Hemophilia: What school personnel should know
Hemophilia Program
Eastern Health, Janeway Site
Room 2J755
300 Prince Philip Drive
St. John’s, Newfoundland A1B 3V6
Clinic directors
Dr. Lynette Bowes
Dr. Paul Moorehead
Dr. Jacqueline Costello
Dr. Natasha Pardy
Nurse coordinator
Jill MacDonald
Tel: 709-777-4374
Fax: 709-777-4292
Physiotherapists
Colleen Jones Down
Physiotherapy Department
Room 1J052
Tel.: 709-777-4346
Fax: 709-777-4499
Social worker
Room J4294
Tel.: 709-777-4434
Fax: 709-777-4796
The hemophilia treatment centres for patients living in Prince Edward Island are located in Nova Scotia and New Brunswick.
Clinic directors
Dr. Sean Dolan
Dr. Elizabeth Zed
Dr. Sarah Gander
Nurse coordinator
Shauna Gray
Inherited Bleeding Disorder Clinic
Saint John Regional Hospital
400 University Avenue, PO Box 2100
Saint John, New Brunswick E2L 4L2
Tel.: 506-648-7286
Fax: 506-648-7379
Physiotherapist
Alison Robichaud
Physiotherapy Department
Saint John Regional Hospital
400 University Avenue, PO Box 2100
Saint John, New Brunswick E2L 4L2
Tel.: 506-648-6912
Fax: 506-648-6913
The hemophilia treatment centres for patients living in Prince Edward Island are located in Nova Scotia and New Brunswick.
Clinic directors
Dr. Ismail A Sharif
Dr. Nizar Abdel-Samad
Nurse coordinator
Dorine Belliveau
Hemophilia Clinic
RHA-B, The Moncton Hospital
135 MacBeath Avenue
Moncton, New Brunswick E1C 6Z8
Tel.: 506-857-5465 (nurses’ station)
Tel.: 506-857-5467 (Dorine’s line)
Emergencies: 1-888-475-9922
Pager: 506-558-7158
Fax: 506-857-5464
Physiotherapist
Tammy Betts
Physiotherapy Department
Tel.: 506-857-5326
Fax: 506-857-5477
Social worker
Melanie Doiron
Room 6503
Tel.: 506-860-2341
Fax: 506-857-5775
The hemophilia treatment centres for patients living in Prince Edward Island are located in Nova Scotia and New Brunswick.
Clinic directors
Dr. Sue Robinson
Dr. Mary-Margaret Keating
Nurse coordinator
Sue Van Oosten
Hereditary Bleeding Disorders Program
Queen Elizabeth ll Health Sciences Centre
Victoria Building, Room 4020
1276 South Park Street
Halifax, Nova Scotia B3H 2Y9
Tel.: 902-473-5612
Pager: 902-473-2220 # 2226
Fax: 902-473-7596
Physiotherapist
Gail Bellussi
Nova Scotia Rehabilitation Centre
3rd Floor – Physiotherapy
1340 Summer Street
Halifax, Nova Scotia B3H 2E1
Tel: 902-473-1288
Fax: 902-473-3398
Social worker
Janice Spencer
Social Work Department
Queen Elizabeth II Health Sciences Centre
VG Site
1276 South Park Street
Halifax, Nova Scotia B3H 2Y9
Tel.: 902-473-4072
Pager: 902-458-6106
Fax: 902-473-4429
Factor Product Utilization Assistant
Brittany Hoeg
Tel: 902-411-0045 (Both IWK and QEII)
Fax: 902-473-6260
The hemophilia treatment centres for patients living in Prince Edward Island are located in Nova Scotia and New Brunswick.
Clinic directors
Dr. Victoria Price
Dr. Ketan P. Kulkarni
Nurse coordinator
Sue Ann Hawes
Pediatric Bleeding Disorder Clinic
IWK Health Centre
6th Floor Ambulatory Children’s Site
5850/5980 University Avenue
PO Box 9700
Halifax, Nova Scotia B3K 6R8
Tel.: 902-470-8752
Toll-free: 1-888-470-5888
Pager: 902-470-8888 #1982 (Sue Ann)
Pager: 902-470-8888 #1981 (Lynn)
Fax: 902-470-7208
Physiotherapist
Allison Reid
Physiotherapy Department
Tel.: 902-470-8025
Tel.: 902-470-7316
Fax: 902 470-8178
Social Worker
Doug Campbell
Pediatric Social Work Office
2nd Floor Children’s Building
Tel.: 902-470-8167
Fax: 902-470-7211
Inherited Bleeding Disorder Clinic
Saint John Regional Hospital
400 University Avenue, PO Box 2100
Saint John, New Brunswick E2L 4L2
Clinic directors
Dr. Sean Dolan
Dr. Elizabeth Zed
Dr. Sarah Gander
Nurse coordinator
Shauna Gray
Tel.: 506-648-7286
Pager: 506-646-3757
Fax: 506-648-7379
Physiotherapist
Alison Robichaud
Physiotherapy Department
Tel.: 506-648-6912
Fax: 506-648-6913
Hemophilia Clinic
Horizon Health Network, Zone 1, Moncton
135 MacBeath Avenue
Moncton, New Brunswick E1C 6Z8
Clinic director
Dr. Ismail A Sharif
Dr. Nizar Abdel-Samad
Nurse coordinator
Stephanie Daigle
Tel.: 506-857-5465
Tel.: 506-857-5467
Tel.: 1-888-475-9922 (emergency)
Fax: 506-857-5464
Physiotherapist
Tammy Betts
Physiotherapy Department
Tel.: 506-857-5326
Fax: 506-857-5477
Social worker
Melanie Doiron
Tel.: 506-860-2341
Fax: 506-857-5775
Clinique d’hémophilie
CHUS Hôpital Fleurimont
3001 12e Avenue Nord,
7C Hemato-Onco, Clinique Hémophilie
Sherbrooke, Quebec J1H 5N4
Clinic directors
Dr. Jean-Francois Castilloux, hematologist
Dr. Josée Brossard, pediatric-hematologist
Nurse coordinator
Marie-Hélène Thompson
Tel. : 819-346-1110 ext. 14561
Pager: 819-346-1110, dial 0, # 3771
Fax : 819-348-3855
Fax: 819-564-5434 (hematology)
Physiotherapist
Christine Beaulieu
Tel.: 819-346-1110, 13537
Pager: 819-346-1110, dial 0, # 7327
Centre de l’hémophilie de l’est du Québec
CHA Hôpital de l’Enfant-Jésus
1401 18e Rue , Room J-S067, Door D
Quebec, Quebec G1J 1Z4
Clinic directors
Dr. Christine Demers
Dr. Stéphanie Cloutier
Nurse coordinator
Hélène Néron
Tel.: 418-649-5624
Fax: 418-649-5996
Pager: 418-641-3479
Physiotherapists
Catherine van Neste
Julie Dionne
Olivier Leblanc
Tel.: 418-649-5751
Fax: 418-649-5879
Service d’hémostase congénitale
Montreal Children’s Hospital
1001 Décarie Blvd
Room B RC 2238
Montreal, Quebec H4A 3J1
Tel.: 514-412-4420
Fax: 514-412-4424
Clinic directors
Dr. Margaret Warner
Dr. Catherine Vezina
Dr. Christine A. Sabapathy
Nurse coordinator
Tania Lafleche
Physiotherapist
Marion Hahn
Social worker
Camila Gundel
Tel.: 514-412-4400 ext 22089
Centre d’hémostase, 1st Floor, Ward 12
Pavillon Lucie et André Chagnon du Centre de cancérologie Charles-Bruneau
CHU Sainte-Justine
3175 chemin de la Côte-Sainte-Catherine
Montreal, Quebec H3T 1C5
Clinic directors
Dr. Georges-Étienne Rivard
Dr. Jean St-Louis
Dr. Rochelle Winikoff
Nurse coordinators
Claudine Amesse
Elisabeth Fauvel-Benoit
Tel.: 514-345-4931 ext. 6031 (Claudine) / 6480 (Elisabeth)
Pager: 514-415-5573 (Claudine)
Emergency: 514-345-2360
Fax: 514-345-7749
Claude Meilleur
Quebec Reference Centre for the Treatment of Patients with Inhibitors
Pavillon Lucie et André Chagnon du Centre de cancérologie Charles-Bruneau
CHU Sainte-Justine
3175 chemin de la Côte-Sainte-Catherine
Montreal, Quebec H3T 1C5
Tel: 514-345-4931 ext. 5760
Tel: 514-345-2360 (pager)
Fax: 514-345-7749
Physiotherapists
Nichan (Nick) Zourikian
Physiotherapy Department
Tel.: 514-345-4607
Fax: 514-345-4746
Josie Pilon (back up)
Tel.: 514-345-4931 ext. 7055
Social worker
Lorraine Muise
Specialized pediatrics
Tel: 514-345-4931 ext. 5445
Fax: 514-345-7774
Pager: 514-415-7963
MDU Hematology Clinic
Children’s Hospital of Eastern Ontario
401 Smyth Road, 2nd Floor
Ottawa, Ontario K1H 8L1
Clinic directors
Dr. Robert Klaassen
Dr. Ali Amid
Nurse coordinator
Heather Perkins
Tel.: 613-737-7600 ext. 2368 or ext. 2470
Pager: 613-239-5698
Fax: 613-738-4846
Physiotherapist
Brenda Elliott
Tel.: 613-737-7600, ext. 2859
Fax: 613-738-4839
Social workers
Camelia Lariccia
Krisann Dennis
Tel.: 613-737-7600, ext. 2364
Fax: 613-738-4839
Ottawa Regional Adult Bleeding Disorders Program
The Ottawa Hospital, General Campus
501 Smyth Road, Box 248
Ottawa, Ontario K1H 8L6
Clinic directors
Dr. Alan Tinmouth
Dr. Elianna Saidenberg (Assistant)
Nurse coordinator
Crystal Huntly-Ball
Lucie Lacasse
Tel.: 613-737-8252
Fax: 613-737-8157
Physiotherapist
Simon Bougie
Physiotherapy
The Ottawa Hospital, Riverside Campus
1967 Riverside Drive, Box 28
Ottawa, Ontario K1H 7W9
Tel.: 613-738-8208
Fax: 613 738-8431
South Eastern Ontario Regional Inherited Bleeding Disorders Program
Douglas 3, Room 8-312
Kingston General Hospital
76 Stuart Street
Kingston, Ontario K7L 2V7
Clinic directors
Dr. Paula James
Dr. David Lillicrap
Dr. Mariana Silva
Nurse coordinators
Lisa Thibeault
Megan Chaigneau
Tel.: 613-549-6666 ext. 6999
Pager : 613-536-7570
Fax: 613-548-2435
Physiotherapist
Katie Perri
Tel.: 613-549-6666 ext. 4683
Social worker
Heidi Schmidt, MSW, RSW
Victory 1-3-224A
Tel.: 613-549-6666 ext. 4969
Fax: 613-548-2409
Comprehensive Care Hemophilia Program
Hematology/Oncology Clinic
Hospital for Sick Children
555 University Avenue
Toronto, Ontario M5G 1X8
Clinic directors
Dr. Victor Blanchette
Dr. Manuel Carcao
Dr. Walter Kahr
Dr. Leonardo Brandao
Nurse coordinators
Emily Clarke
Cindy Wakefield
Tel.: 416-813-5871
Pager: 416-377-9716
Fax: 416-813-7701
Physiotherapists
Deirdre Tetzlaff
Department of Rehabilitation Services, Room S229
Tel.: 416-813-6755, ext. 71
Fax: 416-813-8557
Social worker
Diana Cottingham
Sears Cancer Clinic
Tel.: 416-813-6798
Fax: 416-813-6746
Comprehensive Hemophilia Care Centre
Room 4-169 Cardinal Carter North
St. Michael’s Hospital
30 Bond Street
Toronto, Ontario M5B 1W8
Clinic Directors
Dr. Michelle Sholzberg
Dr. Jerome Teitel
Nurse coordinators
Georgina Floros
Grazyna Wozniak
Tel.: 416-864-5129
Pager: 416-685-9404
Fax: 416-864-5310
Physiotherapists
Laurence Boma-Fischer
Tel.: 416-864-6060, ext. 2182
Fax: 416-864-5310
David Hadley
Haemotology/Oncology and Infectious Diseases
2 Donnelley
Tel.: 416-864-6060
Caroline Jones
Outpatient Mobility Program
B1023 Queen Street Lobby
Tel.: 416-864-5180
Social worker
Jordan Lewis
Specialized Complex Care
Tel.: 416-864-6060 ext. 2741
Fax: 416-864-5310
Sudbury and North-Eastern Ontario Hemophilia Program
Health Sciences North
Sudbury Outpatient Centre
865 Regent Street S., 4th floor
Sudbury, Ontario P3E 3Y9
Clinic director
Dr. Kulwant Gill
Nurse coordinator
Elizabeth (Betty Ann) Paradis
Tammy Bourque
Tel.: 705-523-7148
Fax: 705-523-7077
Physiotherapists
Nicole Graham
Mary Sabo, (backup)
Renee Wilson
Children’s Treatment Centre
41 Ramsey Lake Road
Sudbury, Ontario P3E 5J1
Tel.: 705-523-7337 ext. 1461
Fax: 705-560-4273
Social worker
Linda Mansfield Smith
Tel.: 705-523-7148
Fax: 705-523-7077
Hemophilia Program
Thunder Bay Regional Health Sciences Centre
3rd Floor Regional Cancer Care
980 Oliver Road
Thunder Bay, Ontario P7B 6V4
Clinic director
Dr. Nicole Laferriere
Dr. Joel Warkentin
Nurse coordinators
Lori Hygaard
Susie Ostrowski
Helen Pedri
Tel.: 807-684-7251
Tel.: 807-684-7200
Fax: 807-684-5807
Physiotherapist
Angelo Melchiorre
Thunder Bay Regional Health Science Centre
980 Oliver Road
Thunder Bay, Ontario P7B 6V4
Tel.: 807-684-6270
Fax: 807-684-5835
Bleeding Disorders Program
London Health Sciences Centre
Victoria Hospital, Room B1-301
800 Commissioners Road East
London, Ontario N6A 5W9
Clinic directors
Dr. Ian Chin-Yee
Dr. Lawrence Jardine
Secretary
Jenifer McCallum
Nurse coordinator
Lori Laudenbach
Tel.: 519-685-8500 ext. 53582
Pager: 519-685-8500 ext. 15358
Fax: 519-685-8543
Physiotherapist
Mary Jane Steele
Janet Cormier
Southwestern Ontario Bleeding Disorders Program
Thames Valley Children’s Centre
779 Base Line Road East
London, Ontario N6C 5Y6
Tel: 519-685-8700 ext. 50145 (Mary Jane) / ext 52864 (Janet)
Fax: 519-685-8699
Social workers
Cindy Milne Wren
Children’s Hospital
London Health Sciences Centre
800 Commissioners Road East
P.O. Box 5010
London, Ontario N6A 5W9
Tel.: 519-685-8500 ext. 52072
Pager: 519-685-8500 # 14664
Fax: 519-685-8817
Stefan Branov
Children’s Hospital
London Health Sciences Centre
800 Commissioners Road East
P.O. Box 5010
London, Ontario N6A 5W9
Tel.: 519-685-8500 ext. 75392
Pager: 519-685-8500 # 15392
Fax: 519-685-8424
Hemophilia / Pediatric Thrombosis Program
Hamilton Health Sciences Corporation
McMaster Division, 3F Clinic
Clinic directors
Dr. A.K. Chan
Dr. Irwin Walker
Dr. Alfonso Iorio
Nurse coordinators
Kay Decker
Rebecca Goldsmith
Tel.: 905-521-2100 ext. 75978 (Kay) / ext. 75970 (Rebecca)
Pager: 905-521-5030 page 4444 (Kay) / page 4445 (Rebecca)
Toll-free: 1-866-903-4642
Fax: 905-577-8478
Physiotherapists
Karen Strike
Lisa Scott, (backup)
Social worker
Linda Waterhouse
McMaster Division, 3F Clinic
Tel.: 905-521-2100 ext. 76161
Fax: 905-521-2654 (call first)
Bleeding Disorders Program
Health Sciences Centre
Clinic directors
Dr. Jayson Stoffman
Dr. Donald Houston
Dr. Sara Israels
Dr. Emily Rimmer
Dr. Leonard Minuk
Nurse coordinators
Tracy Voth
Dawn Zawadski
Tel.: 204-787-2465
Pager: 204-787-2071 # 3346
Fax: 204-787-1743
Physiotherapists
Matthew Thiessen
Natalie Ruest
Physiotherapy-Child Health
CH246 – 840 Sherbrook Street
Winnipeg, Manitoba R3A 1S1
Tel.: 204-787-2641
Fax: 204-787-1965
Greig Blamey
Blake Richison, (backup)
800 Sherbrook Street, Room RR140E
Winnipeg, Manitoba R3A 1R9
Tel.: 204-787-2922 (Greig)
Tel: 204-787-1965 (Blake)
Fax: 204-787-4960
Social worker
Patty Phrakonkham-Ali
810 Sherbrook Street, MS107
Winnipeg, Manitoba R3A 1R8
Tel.: 204-794-8133
Fax: 204-787-1538
Saskatchewan Bleeding Disorders Program
Royal University Hospital
Tel.: 306-655-6504 (main office)
Clinic directors
Rick Stene – program manager
Dr. Kelsey Brose – medical director, hematologist
Dr. Caroline Hart
Dr. Oksana Prokopchuk-Gauk
Dr. David Stammers
Dr. Roona Sinha
Nurse coordinators
Nancy Hodgson
Tara Schlosser
Rachel McLeod
Tel.: 306-381-4185 (nurses’ office)
Fax: 306-655-6426
Physiotherapists
JoAnn Nilson
Janice Block (back-up)
Administrative assistant
Laurie Guenther
Tel.: 306-655-6504 (main office)
Dr. John Akabutu Comprehensice Centre for Bleeding Disorders – Pediatric Division
Stollery Children’s Hospital
Nurse coordinator
Heather Bauman
Telephone: 780-407-2654
Fax: 780-407-8821
After hours contact number
780-407-8822
Ask to page the pediatric hematologist on call
Social worker
Haley Greenslade
Telephone: 780-407-7276
Fax: 780-407-5101
Elia Fong
Telephone: 780-407-6002
Fax: 780-407-7534
Dr. John Akabutu Comprehensive Centre for Bleeding Disorders – Adult Division
3D Medicine Clinic
Kaye Edmonton Clinic
Clinic director
Dr. Bruce Ritchie
Dr. Lauren Bolster
Dr. Linda Sun
Nurse coordinators – Bleeding
Hilary Darrington
Telephone: 780-407-6588
Fax: 780-407-2605
After hours contact number
780-407-8822
Ask to page Dr. Bruce Ritchie or the adult hematologist on call
Social worker
Sania Naqvi
Telephone: 780-407-5387
Erin McCabe
Jason Waddell (backup)
Product Orders
Emily Moen
Telephone: 780-407-7637
Southern Alberta Pediatric Bleeding Disorder Program
Alberta Children’s Hospital
Clinic director
Dr. Doan Le
Dr. MacGregor Steele
Nurse coordinators
Angela Ruzycki
T: 403-955-7311, T: 403-955-7211 (after hours)
P: 403-212-8223 # 1910
Fax: 403-955-7393
Physiotherapist
Julia Brooks
T: 403-955-2994, Fax: 403-955-7501
Social worker
Hulda Niv
T: 403-955-2557, Fax: 403-955-7799
Southern Alberta Rare Blood and Bleeding Disorders
Comprehensive Care Program – Adult Division
Foothills Medical Centre
Unit 57B Special Services Building
Clinic directors
Dr. Man-Chiu Poon
Dr. Dawn Goodyear
Dr. Adrienne Lee
Dr. Natalia Rydz
Nurse coordinators
Carol Spitzer, Trudy Sale and Julia Hews-Girard
T: 403-944-4057, P: 403-212-8223 # 7015
Fax: 403-944-3220
Social worker
Lezley Ireland
T: 403-944-4483
Fax: 403-944-1446
Physiotherapists
Steve Anthony
Amanda Zahariuk
Clinical psychologist
Dr. Andrea Nelson
T: 403-944-5412
Fax: 403-944-2299
Hemophilia Program of British Columbia – Adult Division
Phone: 604-806-8855 Fax: 604-806-8784
Toll Free: 1-877-806-8855
Clinic directors
Dr. Shannon Jackson
Dr. Paul R. Yenson
Nurse coordinators
Michelle Bech
Karen Sims
Tel.: 604-682-2344 (after hours)
Physiotherapist
Stacey Cave
Social worker
Mirelle LeClaire
Claude Bartholomew (Research)
Burrard Building, Room 491A
Clinic directors
Dr. John K.M. Wu
Nurse coordinators
Erica Crilly
Celina Woo
Tel.: 604-875-2345 ext. 5334
Fax: 604-875-2533
Physiotherapist
Lawren De Marchi
Social worker
Dorcas Lee
Social Work Office, Room B4
Tel.: 604-875-2345 ext. 7101
Fax: 604-875-2012
