Hemophilia Research Million Dollar Club

/Hemophilia Research Million Dollar Club
Hemophilia Research Million Dollar Club2018-08-30T15:43:17+00:00

Help us keep Ken’s dream alive!

This is an exciting and promising time for research in Canada, particularly in hemophilia, gene therapy and new initiatives in von Willebrand disease. The Hemophilia Research Million Dollar Club (HRMDC) is a golden opportunity for you to invest in improved treatment and ultimately to find a cure.

Ken Poyser, a man with severe hemophilia, who passed away in 2010, had a dream. He dreamed of an endowment of at least $1,000,000 to provide funding for inherited bleeding disorder research in Canada. In order to reach this dream, in 1984, with the help of Richard O’Shaunessey, Ed Kubin and many other committed people, the Hemophilia Research Million Dollar Club (HRMDC) was created. In less than six years, the HRMDC reached its million dollar goal!

In 2000, Frank Bott, the father of two sons with hemophilia, also had a vision. His dream was to increase the endowment of the Club to $1.6 million and he spearheaded an ambitious fundraising campaign to which the Club will be forever grateful. Thanks to his efforts and the support of the Canadian Hemophilia Society (CHS), its chapters and regions, and individuals, this goal was attained at the end of 2004 and the fund continues to grow steadily to this day.

The capital of this endowment cannot be touched and this is why it is so important to continue to grow the endowment so that the earnings may be applied to research. The HRMDC, in partnership with the CHS, allocates money on a yearly basis to research encompassing a great range of projects.

There are a number of options available to you.

Voting Class Certificates
There are an unlimited number of these certificates being offered that increase the level of the endowment. The investment is a single lump sum of $5,000 or five annual payments of $1,000. As well as being publicly recognized for their contributions, the voting class certificate holders elect the Administrators and approve funding recommendations, changes in concepts and objectives of the HRMDC.

Non-Voting Class Certificates
An unlimited number of non-voting certificates are being offered. While these do not accord any voting rights, contributors are publicly recognized. The cost is a single lump sum of $500 or five installments of $100. This is a good way to honour the special ‘Angel’ in your life (see testimonials Ken Poyser).

Honorary Certificates
These certificates are very popular as a means of giving recognition to some group or individual, whether living or deceased. They sell for $3,000 each and both the contributor and honoree are publicly recognized.

Donations
Donations in any amount are always welcomed.

All contributions can also be made in recognition of some group or individual, whether living or deceased, and are tax-deductible.

You can make a donation online.
You can also donate by mail, fax or phone.

Or you may download and print the Million Dollar Club Donation Form

The HRMDC is a dedicated fund of the Canadian Hemophilia Society. The CHS is the sole beneficiary of research funding through its research program, Dream of a Cure. The Administrators, who are elected by the Voting Class Certificate holders for a term of three years, handle all the operations of the HRMDC, make investment recommendations, solicit contributions, and advise the CHS Board of Directors on how much money is available for research in a particular year.

The HRMDC does not decide what research will get funding. Rather, this is the responsibility of a professional peer group of physicians and researchers appointed by the Canadian Hemophilia Society. The CHS Board of Directors approves all recommendations made by the Administrators and Voting Class Certificate holders.

Ken Poyser, member of the Order of Canada

At the CHS Awards Banquet in December 2006, Ken was presented with the International Contribution Award in recognition of his efforts over a number of years to develop care and services for people with inherited bleeding disorders around the world. On this occasion, he wanted to find a unique and special way to honour the special angel in his life – his wife Darlene.  That evening he issued a heartfelt challenge letting everyone know that he would make a $500 donation to the Hemophilia Research Million Dollar Club to honour his angel and, if five others were willing to match his donation, he would double his gift.  His challenge was quickly taken up. he contributed $1,000 and collectively $5,000 was raised to benefit research. The Angel Club was born. Join us and honour that very special ‘angel’ in your life.

 

Dr. David Lillicrap

The future continues to hold so much hope. Long-acting products and gene therapy may change everything we know. The arrival of new therapies could make a massive difference and dramatically decrease the impact of the disease for people with hemophilia. It’s an astonishing time. Truly, truly an incredible time for families with hemophilia.

 

 

 

Dr. Shannon Jackson

Fifty years ago, a child with severe hemophilia was born into a life with serious bleeding episodes, guaranteed joint damage and chronic pain. Today, after decades of research, children with hemophilia can look forward to much healthier and more active lives. Ongoing research will set the stage for the next generations to achieve the dream of a long-term cure.

TO MAKE A DIFFERENCE
or for more information please contact:
Joyce Argall

1-800-668-2686
jargall@hemophilia.ca

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