International Twinning Program

/International Twinning Program
International Twinning Program2018-08-17T14:18:52+00:00

As an active example of the World Federation of Hemophilia (WFH) vision of Treatment for All, the WFH twinning program has enjoyed success and growth in the past few years.

While the primary mission of the Canadian Hemophilia Society is to work within our own borders on behalf of Canadians, it also recognizes our responsibility to the global bleeding disorder community.

CANADIAN ACTIVE ORGANIZATIONAL TWINS IN 2018

Mongolia National Hemophilia Association & Canadian Hemophilia Society (Manitoba Chapter)
Partnership established in 2016.

Hemophilia Association of the Philippines for Love and Service (HAPLOS) & the CHS
Partnership established in 2018.

Association tunisienne des hémophiles (ATH) & the Quebec chapter (SCHQ) 
Partnership established in 2018.

National Youth Committees of the Hemophilia Society of Bangladesh (HSB) and of the CHS: Special Youth Twinning Pilot Project of the WFH
Partnership established in 2018.

 

CANADIAN ACTIVE CENTRE TWINS IN 2018

Queen Elizabeth Hospital, Barbados with Toronto’s Sick Kids Hospital and St. Michael Hospital 
Partnership established in 2018.

 

By linking hemophilia organizations and treatment centres in developing and developed countries, the twinning program has improved diagnosis and medical attention for people with hemophilia in many countries.

Wyeth (now part of Pfizer) spokesperson, Catherine Béhague, said the company is committed to sponsoring the program “because we believe it brings critical knowledge and treatment options to areas of the world where they otherwise might not have them.”

WFH President, Mark W. Skinner, wrote on April 3, 2008: “The funding provided will support the Twinning activities of the more than 80 Hemophilia Treatment centers and Organizations in the program around the world.”

Feedback from partners in developed countries suggests that twinning is a positive two-way experience that motivates staff and volunteers, attracts youth involvement, and enables both sides to learn from each other.

The WFH annually recognizes the most exceptional organization and treatment centre partnerships with Twins of the Year Awards:

Congratulations to the Mongolia-Manitoba twins for winning the 2017 Twins of the Year Award!

The WFH Hemophilia Organization Twinning Committee recently chose out of an impressive pool of candidates the Mongolia National Hemophilia Association & Canadian Hemophilia Society (Manitoba Chapter) twins to be presented with the 2017 Hemophilia Organization Twins of the Year Award. 

The committee members were all impressed impressed by the scope of the activities undertaken in 2017 including the collaboration with the World Health Organization in developing software for patients and medical professionals, the printing and distribution of a book on prophylaxis as well and other pamphlets, organizing a successful annual Education Day as well as Continuing Education Seminar, building relationships with other NGOs in Mongolia including the Canadian embassy, in addition to developing and improving internal communication strategies of the members of the MNAH. 

Congratulations to the Tanzania-Ontario twins for winning the 2016 Twins of the Year Award!

The WFH Hemophilia Organization Twinning Committee recently chose out of an impressive pool of candidates the Haemophilia Society of Tanzania-Hemophilia Ontario twins to be presented with the 2016 Hemophilia Organization Twins of the Year Award.

The committee members were all impressed by the scope of the activities undertaken in 2016 including the successful execution of the educational activities by/for the Mothers and Youth groups; the Board Training of the members of the HST; a well-attended medical symposium, with participants coming from 10 different regions in the country; the HST AnnualGeneral Meeting (AGM) that took place in December 2016; the printing and distribution of Hemophilia booklet to healthcare professionals as well as patients and their families; in addition to the advocacy work and continued communication between partners.

The CHS and the HSB receive the WFH 2015 Hemophilia Organization Twins of the Year Award. Kudos to all who made this twinning such a success both in Bangladesh and Canada.

The World Federation of Hemophilia Organization Twinning Committee was very impressed by the scope of the activities undertaken in 2015 by the Canadian Hemophilia Society (CHS) and the Hemophilia Society of Bangladesh (HSB) twinning including the successful execution and analysis of the first bleeding disorder survey in Bangladesh, the development of a three-year strategic plan for HSB, a successful action planning workshop for lay and medical members of HSB, a webinar to help HSB develop a communications and marketing plan, and the participation of HSB President Nurul Islam at Rendez-vous 2015 held in Halifax which included a presentation on the survey exercise.

Congratulations to the Quebec Chapter and its twin, the Nicaraguan Hemophilia Association, for the WFH 2014 Hemophilia Organization Twins of the Year Award !

The WFH twinning committee was impressed by the scope of the activities undertaken in 2014 including the inauguration of the NMO office, organization of three educational workshops for members, training on self-infusion and prevention, initiation of board training and advocacy training and the continued communication between partners.

The CHS is also proud that in 2010 Canada won both the Hemophilia Organization Twins of the Year Award  and the Hemophilia Treatment Centre Twins of the Year Award :

Association tunisienne des hémophiles (ATH) 
&
Canadian Hemophilia Society – Quebec Chapter (CHSQ)

for the following achievements:

  • Training of board members on good governance and volunteer skills;
  • Development of roles and responsibilities for the board;
  • Development of a strategic plan for the organization;
  • Provision of psychosocial support for families;
  • Training for young people with hemophilia;
  • Providing home care workshops.

Delhi (India) – Winnipeg (Canada)
Hemophilia Society (Delhi) – Lions Kidney Hospital & Urology Research Institute
&
Comprehensive Hemophilia Care Centre of the Manitoba Pediatric Bleeding Disorders Program

for the following achievements:

  • City-wide workshop for nurses;
  • Educational workshops for families;
  • Physiotherapy training;
  • Laboratory training;
  • Provision of patient assessment tools and patient educational materials.

2010 Twin of the Year Awards Poster

This was our third prize in 3 years given that the 2008 Hemophilia Organization Twins of the Year Award was given to:

South Africa – Canada
South African Haemophilia Foundation
&
Canadian Hemophilia Societyfor the following acheivements:
•Initiating outreach to rural areas and to patients with inhibitors 
•Continuing the development of patient support groups 
•Developing lobbying and advocacy strategies 
•Providing training on pharmaceutical relations 
•Developing links between both organizations’ youth groups 
•Providing a fellowship for a young South African person with hemophilia to attend youth camp in Toronto 2008 Twin of the Year Awards Poster
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