Learning to learn and passing it on

/Learning to learn and passing it on
Learning to learn and passing it on2018-10-18T22:38:23+00:00

The CHS retreat entitled Learning to learn and passing it on was initiated as a result of the session on ageing with a bleeding disorder held during Rendez-vous 2017. Its goal is to address current needs of people ageing with a bleeding disorder and to help address future needs. The CHS will offer about 30 sponsorships to enable Canadian men and women, aged 50 years and over, living with a bleeding disorder, and/or their caregiver/support person, to attend the retreat taking place at the Chantecler Hotel in Sainte-Adèle, Quebec, November 2-4, 2018.

For the purpose of this workshop, the expression “caregiver” or “support person” is defined as an unpaid person, usually within the family environment, who provides personal assistance, emotional support and/or physical care to a person with a bleeding disorder, 50 years of age or older.

The sponsorship program is open to Canadian men and women with an inherited bleeding disorder, aged 50 and over. The retreat is also open to their caregivers / support persons whether they attend with the person they care for or not.

A Selection Committee will choose the participants from the received applications based on their qualifications, and geographical criteria to ensure national representation (as much as possible) and a good balance among participant profiles.



For more information or questions, please contact Mr. Michel Long by e-mail at mlong@hemophilia.ca or by phone toll-free at 1-800-668-2686

– Create support groups for ageing adults and their caregiver/support person;

– Provide opportunities for ageing adults to learn about and to secure the resources they need;

– Increase awareness of and enhance educational opportunities for people ageing with a bleeding disorder.

– Models of support groups will be identified which the CHS and its chapters could implement;

– Ageing adults will have learned about existing resources at their disposal, thus making those resources more accessible for them;

– Participants will have benefitted from an educational opportunity on specific topics offered during the gathering.

To qualify, the following criteria must be met:

  • Applicant needs to be a Canadian citizen or permanent resident over the age of 50 with hemophilia, von Willebrand disease, other rare factor deficiency, including carriers.
  • Applicant must be able to communicate in English, the language of the retreat (Francophones can nonetheless answer the questions in French on the application form).
  • Caregiver/support person must be caring for a person aged 50 and older with one of the above conditions. The caregiver/support person can be of any age.
  • Applicant must be committed to attend the entire event.


Participants are to pay a nominal non-refundable registration fee* upon being accepted.

*Registration fee can be partially or totally waived based on ability to pay following a confidential application process. No one will be excluded because of financial reasons.

  • Hotel accommodation at the Chantecler Hotel in Sainte-Adèle, Quebec. All participants will have single room occupancy, unless double occupancy is requested. Participants who choose to stay with friends or family in a double room are eligible for a $25 reduction of their registration fee. All hotel arrangements will be done through the CHS. You will receive confirmation of your hotel arrangements by e-mail;
  • The CHS does not cover the cost of in-room services such as phone calls, movies, Internet service, room service, minibar or any other services provided by the hotel. The hotel will bill you directly for such expenses when you check-out. The hotel will require a credit card or cash security deposit prior to check-in. You are reminded to take an appropriate means of payment for these charges or the hotel may deny your reservation. If this is problematic, please contact the CHS to make alternate arrangements.
  • Return transportation between Montreal Trudeau International Airport and the residence of the participant. All air and train travel will be arranged through a third party designated by the CHS. Travel will be economy class, and our travel agent will contact you with travel instructions. Transportation to and from the airport from your home (i.e. taxi, bus or train) will be reimbursed by the CHS. You are encouraged to share taxis when possible. The CHS will arrange a shuttle service between Montreal Trudeau International Airport and the Chantecler Hotel to coincide with arriving and departing flights on November 2 and 4 respectively.
  • Participants using their personal vehicle may submit for mileage reimbursement at the rate of $0.365/km as long as this amount is equal to or less than other public forms of transportation. When the mileage amount is greater than the cost of other forms of public transportation, the CHS will reimburse the equivalent cost of the public transportation only.
  • Where possible, participants will travel on the conference days and limit their hotel stay to no more than two nights for the two-day conference. Participants are permitted to arrive early or leave late for personal reasons if, by doing so, the cost of the ticket is no more expensive than arrival or departure at the times defined by the CHS. The CHS will not reimburse for any expenses related to a personally-motivated early arrival or late departure, such as hotel or food.
  • The CHS will cover all meals during the retreat itself. The CHS does not reimburse for any other meals except for out-of-town participants who are travelling by air/train. The reimbursement amount for each meal can be claimed by providing an expense report along with receipts based on the CHS travel policy.

Please note: Should you cancel or not attend the conference, you will be responsible for any expenses incurred by the CHS for your travel and/or accommodations. Participants are strongly encouraged to purchase travel health insurance when possible and to travel with their medication/factor concentrates.

Click here to access the program at a glance5.

  • During the ageing retreat we will start each morning with an exercise session led by Kathy Mulder, physiotherapist. In this session we will learn about falls risk while practicing ways to limit the risk. Falls risks are a major contributor to our frailty as we age. Participants will gain experience with different strategies to stay on their feet. We will also gather some data on ageing in our community by employing a falls risk test. Open to all
  • We will also look at the medical landscape as it is affected by ageing. Dr Jackson and Dr Teitel will provide an overview of special considerations for our ageing population: possible topics might include cardio vascular disease, bone mineral density, renal disease, and in a second session we will learn about the many recent advances in the management of bleeding disorders. Open to all
  • In a session, led by Claude Bartholomew (Social Worker) on important documents, currently called Nuts and Bolts, we will review documents like representation agreements, and living wills. Included in this session will be an overview of the relevant documents, the differences from province to province, barriers to getting them done, and strategies for overcoming the barriers. This session may include some hands-on experience with these kinds of documents. Open to all
  • Social isolation. What keeps people with bleeding disorders from remaining connected to the world around us, what strategies can we employ to remain a part of our community. Open to people with bleeding disorders only.
  • Caregiver/Partner support will be a chance to experience peer support and an examination of the potential for a national peer support network for caregivers and what that might look like. Open to caregivers only.
  • Panel Discussion. Building better relationships with your clinic and other healthcare providers: strategies and challenges to building an integrated health care team with the many providers we will be needing as we age.  Open to all.

We will also be providing willing participants an opportunity to participate in an oral history project called Bleeding in my day. A video room will be available for participants to share their stories of what living with bleeding disorders was like growing up.

Registration period now closed.


For more information or questions, please contact Mr. Michel Long by e-mail at mlong@hemophilia.ca or by phone toll-free at 1-800-668-2686

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