On May 27, 2017 in Toronto, in conjunction with Rendez-vous 2017, the CHS recognized dedicated volunteers, staff and health care providers who made a significant contribution to the bleeding disorder community.
The CHS National Awards Program has become a biennial program, with awards presented every two years in May at the Rendez-vous joint meeting hosted by the CHS and the four health care groups. The next deadline for submitting nominations is January 31, 2019.
To be used for the following awards:
Frank Schnabel, Honourary Life Membership, John Plater Advocacy, Chapter Leadership, Exceptional Service, International Contribution, Dr. Cecil Harris, Award of Appreciation, David Pouliot Achievement and Pierre Latreille
This award was initiated to honour the outstanding service of Frank Schnabel, the founder of the Canadian Hemophilia Society, for his valued role in the growth and development of the CHS, the education and care of people with hemophilia and other bleeding disorders, and the education of the public regarding the needs of the bleeding disorders community. The award is presented in his name to honour a volunteer at the national level of the CHS, who, over a number of years, has rendered distinguished services and noteworthy contributions to the mission and objective of the CHS at the national level.
2017 RECIPIENT | CRAIG UPSHAW
Craig is the longest serving president of the CHS with the exception of our founder, Frank Schnabel. He volunteered in his home chapter of Alberta for many years before serving on various CHS committees, working groups and the Board of Directors.
He was a member of several committees but is especially well respected for his work on the Blood Safety and Supply Committee where due to his scientific background and extensive knowledge of blood products and pharmaceuticals, he contributed to the committee’s expertise. For years, he has maintained a focus on access to a safe supply of coagulation products for all people with bleeding disorders. He has participated in product tender processes and has been a strong voice on national and international advisory boards.
Craig was a key player in advocacy which led to the indexation of the Multi-Provincial Territorial Assistance Program in 2006. He also lobbied successfully with provincial/territorial governments for access to extended half-life products throughout 2014-16. He helped to push the Canadian Bleeding Disorders Registry project to successful completion in 2015.
Craig became president of the CHS in 2010, a time of tremendous change. His business experience helped guide the board to make critical decisions with regard to financial and human resources so that the CHS could remain focused on its mission. During his term, the CHS aligned its board structure and by-laws to conform with the new Canada Not-for-Profit Corporations Act and then completed a strategic planning process that resulted in our current Strategic Plan.
Craig has fostered strong relationships with key stakeholders such as the World Federation of Hemophilia and other patient organizations. Craig is available to staff and volunteers on a daily basis to provide advice, encouragement and support. He is a well-respected friend and mentor to many across our national and global hemophilia communities.
2015 – Dan Doran
2011 – François Laroche
2006 – Eric Stolte
2004 – Pam Wilton
2003 – Tom Alloway, Ph.D.
2002 – Bill Mindell
2001 – Michael McCarthy
1999 – Barry Isaac, Ph.D.
1998 – Erma Chapman
1997 – John Plater
1997 – Ken Little
1996 – Durhane Wong-Rieger, Ph.D.
1994 – Frank Bott
1992 – David Page
1991 – Peter Wachter
This award honours an individual who has demonstrated outstanding service to the care of people with inherited bleeding disorders over and above their responsibilities as a member of the hemophilia health care team. This person must have worked with patients with hemophilia and their families for a minimum of 5 years. Preference will be given to an individual whose work has contributed to improving care and treatment on a national level through the CHS. It is preferable that there be only one recipient from a category. This award will be limited to a maximum of 2 individuals in a given year, unless exceptional circumstances require special consideration.
2017 RECIPIENT | ANNE VAUGHAN, RSW
Anne Vaughan has been an integral member of the bleeding disorder clinic team at the IWK Health Centre in Halifax for the past nine years. In her capacity as a social worker, she continues to be dedicated and committed to the care of children and their families affected by bleeding disorders both in the Maritimes and nationally. Two of her most significant achievements include introducing the Parents Empowering Parents Program (PEP) and facilitating transition of care from pediatric to adult bleeding disorder clinics.As a member of the national PEP Steering Committee, she has been the driving force in bringing and sustaining this valuable program in Canada. Anne’s vision for the program has always been to offer access to PEP to ALL Canadians. After nine years of effort, Anne will see the first French speaking workshop delivered in the fall of 2017. Anne demonstrates a strong belief in the value of collaboration between health care providers and patients to bring this program to families across the country. She is welcoming and respectful of all opinions and willing to try new ideas. Anne is a dynamic leader who is always present in current activities but also always looking forward to what should come next. Members of the PEP Committee have learned so much, both professionally and personally, from the time they have spent with Anne. Under her leadership, the committee has developed tools to help her colleagues and the chapters deliver the PEP program in various formats and to ensure the program endures. Anne brings a level of enthusiasm and dedication to her work that inspires the members of the committee to work hard and to dream big.In her position as a social worker, Anne keenly understands the challenges facing our families. Anne’s dedication and volunteer work come from a deep respect for the families she serves. Anne’s tireless volunteer work with the PEP Program is motivated by her desire to give families the tools they need to manage the job of parenting with the added challenges of a bleeding disorder. There is no doubt that her work, and her volunteer work, come directly from her heart.
In addition to the PEP Program, she continues to be of great support and resource for families and colleagues alike. She is tireless in seeking out and advocating for every possible opportunity for individuals with bleeding disorders. We admire and respect Anne for her professional, objective, and non-judgmental interactions with everyone.
2015 – Michelle Sims, RSW & JoAnn Nilson, PT
2013 – Morna Brown, RN
2011 – Lucie Lacasse, RN
& Suzanne Douesnard, Psychologist
2008 – Anne Marie Stain, RN
2008 – Linda Waterhouse, RSW
2007 – Claudine Amesse, RN
2007 – Greig Blamey, PT
2006 – Dorine Belliveau, RN
2006 – Ruanna Jones, RSW
2005 – Sylvie Lacroix, RN
2005 – Nichan Zourikian, PT
2004 – Jenny Aikenhead, PT
2004 – Rose Jacobson, RN
2004 – Jennifer Crump, RN
2004 – Michelle Hendry, Lab Tech
2003 – Sherry Purcell, RN
2003 – Pam Hilliard, PT
2002 – Maureen Brownlow, RSW
2002 – Julia Sek, RN
2001 – Kathy Mulder, PT
2001 – Wilma McClure, RN
2000 – Betty Ann Paradis, RN
1999 – Nora Schwetz, RN
1998 – Ann Harrington, RN
1998 – Jane Neil, PT
1997 – Lois Lindner, RN
1997 – Muriel Girard, RN
1996 – John (Jack) McDonald, Ph.D., RSW
1996 – Brenda Blair, RN
1995 – Lorraine Bernier, RN
This award is given to an individual who has merited special national recognition for outstanding efforts to further the growth and development of a particular chapter. Among the criteria to be considered in making this award are the following:
• exceptional leadership and devotion at the chapter level over a minimum period of 5 years
• clearly identifiable achievements that have contributed to the development and growth of the chapter in an outstanding and significant way (e.g. fundraising, program and services, volunteer recruitment and membership growth)
In making a nomination, consider who has made the greatest contribution to the development of the chapter over its history and who meets the criteria set out above. This does not preclude someone who has also made a contribution at the national level, but the focus of this award is on achievements on behalf of the chapter. The award can be made posthumously.
Paul Wilton is a past-president of Hemophilia Ontario. He served as vice-president of the Canadian Hemophilia Society and was chair of its Governance Committee. His advocacy in the area of Blood Safety led to his appointment on the World Federation of Hemophilia’s Treatment Product Safety, Supply and Access Committee. In 2009, he was awarded the Canadian Blood Services’ Honouring our Lifeblood Award and previously served on their Southern Ontario Regional Liaison Committee. He also served as director of Hemophilia Ontario’s Pinecrest Adventures Camp, and was awarded the John Meyers Award.
Paul has been a committed volunteer with a significant history of leadership, participation and involvement since being diagnosed in 1986. Paul’s early contributions to Pinecrest revealed his leadership qualities. He was instrumental in fostering a true leadership development program for the camp, encouraging young campers to take on progressively more demanding responsibilities. Many of whom participated have gone on to make significant contributions to the community as board members and valuable volunteers. Paul has a unique ability to identify individuals with the necessary strategic skills and successfully encourage them to use those skills in service to the community and the organization.
He received the Alumni Student of the Year award at King’s University in 2013, recognizing his volunteering in the community, including his work in the hemophilia community. Paul’s contributions to Hemophilia Ontario are significant. Over the years, he has served on many boards and committees at both the regional, provincial and national levels. During his presidency, Paul was instrumental in updating and changing Hemophilia Ontario’s governance and by-laws. His efforts to improve the chapter’s governance contributed to ensuring a smooth transition at a time when the chapter was facing cutbacks in funding. Today, thanks to his work, Hemophilia Ontario continues to be a strong, vital chapter, making a difference in the lives of Ontarians with bleeding disorders.
2015 – Joe Doran
2013 – Bill Featherstone
2011 – Helen Gibson
2008 – Jeff Beck
2007 – Dan Doran
2006 – Norman Locke
2005 – Christine Keilback
2004 – François Laroche
2003 – James (Jimmy) Love (in memoriam)
2001 – Eric Stolte and Craig Wright (in memoriam)
1999 – Lois Bedard, Joyce Rosenthal
1998 – Normand Landry
This award was initiated in memory of Pierre Latreille who was the CHS Finance Manager for many years. This award for excellence is given to an employee of the CHS who has worked at the national, provincial or regional level for a minimum of 5 years. The recipient is expected to have demonstrated skills, dedication and accomplishments beyond the normal duties of an employee. The recipient should meet the following criteria which are based on qualities demonstrated by Pierre:
• Personal character and values: a person with a positive caring and supportive attitude towards volunteers and other staff
• A sense of teamwork: a person who is a reliable team player, dependable and co-operative – one who contributes to team success.
• A focus on the needs of people with bleeding disorders: a staff member committed to serving the organization with excellence, creativity and efficiency.
2017 RECIPIENT | ROBERT SHEARER
Robert (Bob) Shearer was the CHS executive director from 1987 to 1992. During these very difficult times, Bob was able to provide the leadership at the board level that brought balance to HIV and non-HIV issues.
His support and caring extended to provincial matters. He was always professional but full of fun at a time when it was most needed. His visits across the country helped cement chapter/national relationships.
With his encouragement and support the CHS was successful in advocating for HIV-positive hemophiliacs on both the provincial and national levels.This was not particularly popular as hemophiliacs at that time did not want to be assumed HIV-positive simply by association. Others put the human face on the HIV issue and helped bring a resolution to compensation but the groundwork was done at the national board level under his direction.
None of these accomplishments would have been possible without the strong and capable leadership of Bob. His dedication and tireless efforts gave the CHS the stature we enjoy to this day. His good humour and ready smile helped both staff and volunteers as they fought battle after battle for the rights and welfare of all Canadians affected by a bleeding disorder.
2013 – Christine Keilback
2011 – Geneviève Beauregard
2006 – Aline Ostrowski
2005 – Joyce Argall
2004 – Karen Olson
2003 – Jane Bishop
2002 – Robert St-Pierre
2001 – Clare Cecchini
2000 – Hélène Bourgaize
This award is designed to recognize chapters and regions who have demonstrated a significant achievement over the preceding year (or years) in one or more specific areas such as fundraising, communications, peer support/education, advocacy or chapter development.
2017 RECIPIENT | HEMOPHILIA SASKATCHEWAN – Awareness and Advocacy
Every year, Hemophilia Saskatchewan volunteers have manned a booth in shopping centres in support of World Hemophilia Day. In addition to this awareness initiative, the chapter organized a conference on Women and Bleeding Disorders. At this event, 38 women from both Saskatchewan and Manitoba gathered in Saskatoon to discuss von Willebrand disease challenges for women, new treatments and approaches, the psychosocial impact of having a bleeding disorder, the genetics of bleeding disorders and much more.
One of the biggest achievements of the chapter was, without a doubt, their success in obtaining funding for a second pediatric hematologist. In May 2015, the chapter approached the Saskatchewan Health Minister regarding the lack of coverage in pediatric hematology. The Ministry was quick to realize that the workload was too much for one pediatric hematologist in Saskatchewan. This was also reflected in the HTC audit conducted by the CHS. In their letter, the chapter urged the Health Minister to provide funding for a second hematologist. A few months later, the hematology team at the clinic posted for a second pediatric hematologist and credited this success to the advocacy role of Hemophilia Saskatchewan.
2015 – Alberta Chapter – Chapter Development
2015 – Quebec Chapter – Increase in Membership
2013 – Hemophilia Ontario – Chapter Development
2011 – Manitoba Chapter – Volunteer Development
2008 – New Brunswick Chapter – Chapter Development
2007 – Prince Edward Island Chapter – Public Awareness
2006 – Nova Scotia Chapter – Communications and Chapter Development
2006 – Newfoundland & Labrador Chapter – Public Awareness
2005 – Quebec Chapter – Patient Services and Advocacy
2005 – Newfoundland and Labrador Chapter – Public Awareness and Communications
2004 – Alberta Chapter – Chapter Development
2004 – Manitoba Chapter – Advocacy and Diversification of Funding
2003 – British Columbia Chapter – Fundraising
2002 – Hemophilia Ontario – Ottawa and Eastern Ontario Region – Fundraising
2001 – Newfoundland and Labrador Chapter – Advocacy
2001 – Alberta Chapter – Education
2000 – Hemophilia Saskatchewan – Advocacy
1999 – Quebec Chapter – Fundraising
1998 – Quebec Chapter – Advocacy
1998 – Toronto and Central Ontario Region – Outreach to people with VWD
1997 – Manitoba Chapter – Education (Rural Outreach)
1997 – Hemophilia Ontario – Communications
1997 – Newfoundland and Labrador Chapter – Fundraising
1996 – Nova Scotia Chapter – Advocacy
1996 – Quebec Chapter – Advocacy
1996 – Newfoundland and Labrador Chapter – Chapter Development
1996 – Hemophilia Ontario, Central West Ontario Region Education & Outreach
1995 – Prince Edward Island Chapter – Advocacy
1995 – Hemophilia Ontario -Youth Activities
This award was initiated to honour the outstanding contribution of Dr.Cecil Harris, the first medical advisor of the CHS. This award is presented to a physician in recognition of distinguished contributions in the areas of research or the advancement of the care of patients with hemophilia or other inherited bleeding disorders. It is preferable that only one physician be recognized in a given year, unless exceptional circumstances require special consideration.
2017 RECIPIENT | DR. PAULA JAMES
Dr. James obtained her MD and subsequent training in internal medicine at the University of Saskatchewan. During her internal medicine training she had already developed an interest in hematology, and specifically in the care of inherited bleeding disorders. After leaving Saskatchewan, Dr. James settled in Kingston to complete her clinical hematology fellowship under the direction of Professor John Matthews. It was very quickly obvious to everyone at Queen’s that she was a bright, committed and highly motivated physician with outstanding clinical skills.
After successfully completing an excellent clinical hematology fellowship, Dr. James entered a 30-month training in basic laboratory research in the Department of Pathology and Molecular Medicine at Queen’s. During this very productive time, she published first authored manuscripts on a novel therapy for hemophilia (use of an agent to promote read-through of pathological stop codons), and was also the first author and prime mover of the landmark Canadian type 1 von Willebrand disease mutational landscape manuscript, published in Blood. After the completion of her research training she established a very well earned international profile as an accomplished clinician and productive researcher in the field of inherited bleeding disorders.
Dr. James’ achievements have been impressive by any standard. Notably, she has been very successful in developing a productive independent research program at the same time as establishing a clinical program for the care of inherited bleeding disorder patients that is second to none.
In the clinic, Dr. James provides outstanding direction to the Kingston Regional Bleeding Disorder Program and has established a superb Women’s Bleeding Disorder Clinic that is a model of multidisciplinary efficiency. Dr. James’ clinical acumen and excellent communication skills make her a favourite with her patients, and she is regularly asked to provide advice about the management of patients with von Willebrand disease from all over Canada.
Dr. James’ clinical expertise in the care of von Willebrand disease has also been recognized by the international bleeding disorder community. She is often invited to give talks at international venues on the management of these patients, and has very recently been invited to be a senior author for the next international clinical guidelines document being generated in a project supported by the World Federation of Hemophilia (WFH), the American Society of Hematology and the International Society on Thrombosis and Haemostasis (ISTH).
As a complement to her exceptional clinical contributions, Dr. James now leads a highly successful research program that has reported novel and important information relating to the molecular pathogenesis of von Willebrand disease, the development and utility of bleeding assessment tools and most recently, the bleeding profile and causation of bleeding in carriers of hemophilia. This work spans investigations from the laboratory bench to human populations, and her recent launch of the “Let’s Talk Period” website promises to integrate a further dimension of research methodology to her portfolio.
Dr. James’ clinical and research accomplishments have already been recognized by institutions within and outside of Canada. In 2011, she shared the US National Hemophilia Foundation Researcher of the Year Award, and in 2015, was the recipient of the Queen’s University Health Sciences Faculty Basmajian Research Award for promising early-career investigators.
In closing, there is not the slightest doubt that Dr. James is an international star in the inherited bleeding disorder community. Her clinical and research contributions to the field of von Willebrand disease have been highly significant, and her work on the development and initial validation of bleeding assessment tools has been immensely influential. She appears to effortlessly blend the skills and attributes of clinician and researcher in a manner that is a model of efficiency and success.
2007 – Dr. Mary Frances Scully
2006 – Dr. Bruce Ritchie
2005 – Dr. Victor Blanchette
2004 – Dr. Sara Israels
2003 – Dr. Hanna Strawczynski
2002 – Dr. Robert Card
2002 – Dr. Mohan Pai
2001 – Dr. John Akabutu
2000 – Dr. Gerry Growe
1999 – Dr. David Lillicrap
1998 – Dr. Irwin Walker
1997 – Dr. Georges-Étienne Rivard
1996 – Dr. Martin Inwood
1995 – Dr. Ken Shumack
1992 – Dr. Man-Chiu Poon
1991 – Dr. Kaiser Ali
This award is presented in honour of David Pouliot to recognize a volunteer between the ages of 18 and 30 who has been instrumental in nurturing young members of the community to become future leaders of the organization and/or who has made a significant contribution to achieving the mission and goals of the CHS.
2015 – Justin Smrz
2011 – Maxime Lacasse Germain (previously the National Outstanding Achievement Award)
This award is presented in recognition of a volunteer who, through continuing efforts over a number of years, has made a significant international contribution to the development of care and services for people with bleeding disorders.
2015 – Bernadette Garvey, MD & Eric Stolte
2013 – Patricia Stewart
2011 – Kathy Mulder, PT
2008 – Dr. Brian Luke
2007 – David Page
2006 – Dr. Man-Chiu Poon
This award is presented in recognition of an individual or organization who, through exceptional service over a number of years, has contributed to the growth and development of the mission of the CHS at the national level.
2007 – Patricia Stewart
2006 – Ian DeAbreu
2005 – Sheila Comerford
2005 – Lorie Reznik, Canadian Blood Agency
This award is the highest category of National Awards and is based on exceptional leadership and devotion to the CHS over many years. This award is given to an individual who has merited special recognition for outstanding efforts, at the national level, to further the mission and objectives of the CHS and the development of public recognition of the CHS and its goals.
2013 – Pamela Wilton
2011 – Bruce Ritchie, MD
2008 – Tom Alloway, Ph.D.
2004 – John Plater
2002 – Frank Bott
1997 – James Kreppner
1997 – Durhane Wong-Rieger, Ph.D.
1996 – Pierre Fournier
1995 – David Page
1994 – John (Jack) McDonald, Ph.D.
1991 – Elaine Woloschuk
This award was initiated to honour the outstanding work of John Plater to advocate for the rights of people with bleeding disorders, HIV and hepatitis C, to improve care and treatment, to advocate for a safer blood system and to obtain financial compensation for people with bleeding disorders infected with HIV and HCV through the blood system. This award will be presented to honour a volunteer at the national or chapter level of the CHS, who, over a number of years, has rendered distinguished advocacy services to meet the mission and goals of the CHS.