This section is intended solely to inform visitors of various research studies and patient recruitment currently underway. Their inclusion is not an endorsement of a particular product, company or study.

CLINICAL TRIALS of medications…phases…the pros and cons…the rights of “subjects”…are trials necessary? You will find below links to websites which provide answers to frequently asked questions about clinical research.

It Starts With Me

Clinical Trials: What you need to know , published by the CIHR Canadian HIV Trials Network in partnership with the Canadian AIDS Society.

Health Canada’s Clinical Trials Database
FAQ page  about Health Canada’s Clinical Trials Database
Access the Clinical Trials Database

ClinicalTrials.gov is a registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals.

Searching for clinical trials just got easier. ANTIDOTE is a revolutionary search engine for clinical trials, covering all medical conditions from all over the world. ANTIDOTE works closely with patients, doctors and pharmaceutical companies to make clinical research information more clear and accessible.

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July 2019

Pain management in hemophilia

The Pain Management in Hemophilia (PMiH) Working Group, a partnership between the Chronic Pain Network and the Association of Hemophilia Clinic Directors of Canada, is conducting a survey amongst people 18 years and older living with hemophilia to examine the scope of their experiences with pain, pain interventions and hemophilia clinics.

The survey consists of 33 questions and should take approximately 20 minutes to complete. Participation is voluntary and results will be used to improve training and treatment of pain in hemophilia.

PMiH is the first pan-Canadian multidisciplinary task force of patient partners, hematologists, pain experts, nurses, physiotherapists, social workers and other health care professionals and researchers.

Please access the survey using the link below:

www.surveymonkey.com/r/S5BM9JF

Should you have any questions, please contact cpn@mcmaster.ca.

Thank you very much for your time and consideration.

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January 2019

Are there inequities in access to care amongst certain groups of patients with bleeding disorders?

St. Michael’s Hospital is conducting a study on access to care, in collaboration with the Canadian Hemophilia Society.

People 18 years and older with a bleeding disorder are being asked to consider participating in this important research study examining access to care and quality of life amongst patients with bleeding disorders.

We are interested in learning more about their experiences. Participants will be asked questions about their symptoms, their diagnosis and their access to medical care.

The entire survey should take less than 15 minutes to complete. Our hope is that this survey will help us better understand where barriers to care might exist for patients.

This research study has been approved by the Providence St. Joseph’s and St. Michael’s Healthcare Research Ethics Board.

Participating in this study is entirely voluntary, and no personal information will be collected.

Please access the survey, including a full description and consent form, using the link below:

www.surveymonkey.com/r/bleeding_access

If you have any questions you may contact the principle study investigators, Dr. Sumedha Arya (sumedha.arya@mail.utoronto.ca) or Dr. Michelle Sholzberg (sholzbergm@smh.ca), at any time.

Thank you very much for your time and consideration.

Access to care patient survey St. Michaels Hospital – FLYER