This section is intended solely to inform visitors of various research studies and patient recruitment currently underway. Their inclusion is not an endorsement of a particular product, company or study.

CLINICAL TRIALS of medications…phases…the pros and cons…the rights of “subjects”…are trials necessary? You will find below links to websites which provide answers to frequently asked questions about clinical research.

It Starts With Me

Clinical Trials: What you need to know , published by the CIHR Canadian HIV Trials Network in partnership with the Canadian AIDS Society.

Health Canada’s Clinical Trials Database
FAQ page  about Health Canada’s Clinical Trials Database
Access the Clinical Trials Database

ClinicalTrials.gov is a registry and results database of federally and privately supported clinical trials conducted in the United States and around the world. ClinicalTrials.gov gives you information about a trial’s purpose, who may participate, locations, and phone numbers for more details. This information should be used in conjunction with advice from health care professionals.

Searching for clinical trials just got easier. ANTIDOTE is a revolutionary search engine for clinical trials, covering all medical conditions from all over the world. ANTIDOTE works closely with patients, doctors and pharmaceutical companies to make clinical research information more clear and accessible.

________________________

January 2019

Are there inequities in access to care amongst certain groups of patients with bleeding disorders?

St. Michael’s Hospital is conducting a study on access to care, in collaboration with the Canadian Hemophilia Society.

People 18 years and older with a bleeding disorder are being asked to consider participating in this important research study examining access to care and quality of life amongst patients with bleeding disorders.

We are interested in learning more about their experiences. Participants will be asked questions about their symptoms, their diagnosis and their access to medical care.

The entire survey should take less than 15 minutes to complete. Our hope is that this survey will help us better understand where barriers to care might exist for patients.

This research study has been approved by the Providence St. Joseph’s and St. Michael’s Healthcare Research Ethics Board.

Participating in this study is entirely voluntary, and no personal information will be collected.

Please access the survey, including a full description and consent form, using the link below:

www.surveymonkey.com/r/bleeding_access

If you have any questions you may contact the principle study investigators, Dr. Sumedha Arya (sumedha.arya@mail.utoronto.ca) or Dr. Michelle Sholzberg (sholzbergm@smh.ca), at any time.

Thank you very much for your time and consideration.

Access to care patient survey St. Michaels Hospital – FLYER

________________________

April 2018
Safety, Acceptance, Fairness, and Equality (SAFE Project): Acceptable Risk and Donor Selection

This study, conducted by researchers at McGill University and the University of Nottingham (funded by the Canadian Blood Services), seeks to better understand people’s attitudes related to blood donation and the current limits on accepting blood from men-who-have-sex-with-men (MSM). In recent years, the policy on accepting blood from MSM has been relaxed somewhat and further changes are contemplated. This fairly brief survey should take only 15 minutes to complete. Although not all questions may seem related to the topic of blood donation, it is hoped that it will give researchers and policy-makers a better idea of a number of things that influence attitudes.

The survey is anonymous. No information that might identify you will be requested. At the end, after the survey has been completed, you will be directed to another part of the website where you can enter your name and e-mail address if you would like to be entered into a lottery with the possibility of winning one of four iPad minis. This is done simply as appreciation of your time and it will not be possible to link your survey responses to this information. If you prefer, you do not have to enter the lottery to complete the survey.

If you have any concerns you may discuss them with the principal investigator, Dr. Blaine Ditto, of the Department of Psychology of McGill University at 514-398-6097 or blaine.ditto@mcgill.ca. You may also contact McGill University’s Research Ethics Officer, Ms. Lynda McNeil at 514-398-6831 or lynda.mcneil@mcgill.ca.

CLICK HERE TO ACCESS THE SURVEY

________________________