A coproduction from the CANADIAN HEMOPHILIA SOCIETY and the IRISH HAEMOPHILIA SOCIETY
PRATIMA CHOWDARY, DR. DAVIDE MATINO, BRIAN O’MAHONY, and DAVID PAGE
Over the last several years, gene therapy for hemophilia B has become a reality. Some received it through clinical trials, and others received it after marketing authorizations and reimbursement approvals in their countries. Each of them had a difficult, life-changing decision to make. They needed to fully understand the potential benefits and risks, and the physicians responsible for their treatment needed to be assured that they were providing fully informed consent to the therapy. This process is called shared decision-making. In this episode of our second podcast series, GENE THERAPY FOR HEMOPHILIA – FROM DREAM TO REALITY, four people, two physicians and two people with hemophilia, were invited to share their insight on this topic.
The podcast is available in video and audio formats. Please click on the links below to access either version.
VIDEO
AUDIO
CLICK HERE to read the transcript of Episode 15.
